The Greatest Gift...

you can give yourself this year is a copy of Alison Adams’s Chronic Fatigue, ME, and Fibromyalgia. While I felt this the first time I read my copy, my second reading assured me. There is absolutely no better manual written for dealing with Morgellons Disease!

Alison primarily shares her own story of recovery (from mercury toxicity related symptoms) along with the narrow alleys and highways within our internal environment. She knows this subject up and down as a sufferer and also a medical professional. I have the greatest respect for her sharing!

The book cost about $16US—that’s approximately the cost of driving to the theater, paying for your ticket, and getting a large popcorn and drink. While the movie has the potential of entertaining you for a couple of hours, this book is certain to open your eyes to conquering issues of toxicity (and, with persistence, giving you your life back or, as Alison shares, true health for the first time).

While the book certainly lends to the argument of Morgellons being a form of mercury toxicity, I found the personal account of Alison’s encounters with the medical world equally enlightening (and shades of my own experiences as well as many, many other Morgellons sufferers). She is a kindred soul, of this I’m certain.

Her website is found in my Morgellons links (top one) and has plenty of worthwhile information (as do all of the links). Give yourself the gift of this book. None of us are alone and, as more and more share on recovery from toxicity, we can benefit from following the path created by one who has journeyed through the bramble of the jungle.

The Happiest of New Years!!

Erasing Panic

The Barrier Theory presents the cause and progression of Morgellons Disease as internal biochemistry changing inorganic species of mercury to organic species (and thus allowing passage beyond the Blood/Brain Barrier). I presented this on Pam Crane’s blog talk radio show and then had it formally published in the medical journal Explore! (vol. 20.5 (2011)). In addition to the theory I suggest Morgellons occurs on a spectrum of less spectacular symptoms to more severe. Heavy metals, such as mercury, block neurotransmissions and cause depression and panic attacks. I guess this paragraph is meant to introduce the topic of panic with the suggestion of one solution.

Not to sound too random, but I once witnessed acupuncture used to treat a lame horse. Within fifteen minutes of treatment, the lame horse was prancing around the pasture. I guess it has always been my best example of- acupuncture isn’t hocus-pocus; it really works!

My neighbor and good friend Linda is an acupuncturist and expert on Chinese medicine. She mentioned treating panic attacks with wrist bands. “They’re used for motion sickness, but they work for panic too,” she said. Of course I was intrigued. I went to the local health food store yesterday and purchased some (called Sea-Band and cost around $10). The bands have little plastic numbs which you align with the acupressure point on your wrist between the central tendons and down 1 1/2 thumb widths from the wrist crease(the company suggest using two, but Linda tells me you only need one). Twenty minutes of wearing them seems to take edge off any panic (I had some confrontations yesterday and think they may have helped), though I suppose you could wear them all the time.

Stress and panic make your internal environment more acidic. I drink a big glass of water with lemon in it first thing in the morning (followed by a glass of water with bentonite clay) to make my insides less acidic (funny how lemons and lime, which seem to be entirely acidic, act in the opposite way when our stomachs are empty). Meditation and pray ease the mind and spirit. The more we do to take care of ourselves, the more we open doors to our health and well-being.

The final form of my novel Beul Nam Beinn is in the capable hands of my editor. I hope to see it out in print form by the end of January (and I hope you are pleased with the dedication). Happy holidays and let us all move into a New Year full of health and happiness! Joe

Holiday Season Wishes

This is the time of year of many holiday celebrations. While I'm a Thanksgiving/Christmas/New Years celebrator, I know there are people who differ from my beliefs who also suffer from Morgellons and other conditions related to toxicity (and I will not leave you out in the cold). If there was one major message Christ shared it is- we are all connected. I'm thankful for this gift called life and this amazing planet we all inhabit. And I am thankful for all of you!

My gift to you is a break from Morgellons. It may be a short one, but please take it anyways. Here it is: http://youtu.be/JbkIXI-E7KE .

I will be taking some time away to be with family, heal more and making some final edits on another book (Beul Nam Beinn will be released soon).

An Online Protocol for T.I.L.T.

I came across this today and thought I'd recommend reading it. T.I.L.T. stands for Toxic Induced Lose of Tolerance and is primarily used in reference to those sick in the Gulf region. The protocol is very similar to the one I am currently following (add to it chelation agents). Bringing it all together is costly, but appears to help most. Of course, as with any approach, I recommend sufferers work with a medical professional. The article is found at: http://morgellonssupport.com/forum/topics/tilt-multiple-chemical .

Morgellons Art

I've been considering an idea and would love some input. I'd like to start an online art show containing representative art work by Morgellons sufferers. I am picturing it as a means for those who haven't had Morgellons symptoms to experience it via art. I know we have all had our separate experiences and wonder if this might be a way to reach the general population.

Thoughts? Thanks, Joe

Putting the Pieces Together

Well, I'm back in my house. I've been trying my best to get on track with detox again...I fell away some with all the stress of coming back to US from overseas (health, family, work...or non-work, etc.). I am finding my sleep, exercise, and other pieces of daily routine to fall better into place.

I am returning to chelation agents suggested by Dr. Bruce Shelton (phospholipid exchange being key). I know they helped matters considerably although are somewhat expensive. I think chelating metals out of hiding is key to improvement (though it takes time).

I also have been hitting the sauna again. This is especially nice on the cold evenings. I will try to include this twice each week from now on.

I do keep exercise as a focus as well. I have started running again. This morning I think I may have jogged 4 miles or so. It is slow going, but, as my cross country couch used to say, I'll get distance down and then work on speed.

When it is considerably colder and the weather turns nasty, I will make use of my rebounder. a half hour of bouncing in the morning makes my day much better!

Anyhow, all is well (considering I do not have any solid employment). Happy trails, Joe

Hindsight is 20/20 or Defense Before the Offense

I'm adjusting to moving back into my house. There's plenty on my mind. I have to clean up from my tenants, have a major porch repair, touch up paint, and prepare for the possibility of someone who will rent a spare room from me. It'll all come together of this I'm certain.

I've been considering all that goes into cleaning out our body systems. If I was to go back to the beginning of my Morgellons symptoms (not that I'd really want to), I would proceed differently. I feel our best approach to is build the bodies defenses before taking on the offenses (toxins).

At the base of all, I like the approach Mel (who also documented recovery with all related at: http://howicuredmorgellons.com/) mentions of his doctor from the start taking the approach of-- do no harm. I used some dangerous pesticides and meds at the beginning (I know many of us have/did). The do no harm approach is likely the best direction.

I know I've written much on pray, meditation, yoga, and other soft forms of exercise as being beneficial. This makes sense as it calms the endocrine system. This along with getting the body less acidic would be the best first steps. Initially I did some of this...but I'm finding it is something needing to become habitual. I am learning (aren't we all?).

If you haven't listened to Dr. Amin's radio/blog show with Pam Crane, I highly recommend it. He has a sensibility and understanding of this condition few do. His understanding is from someone who has been in the trenches from the start (or at least the mid-90s).

One Very Important Hour!

I believe Morgellons Disease is a form of mercury poisoning. I present this as a theory (and have had it published as so). If you have read some of my postings, none of this should come as a surprise. There are two outstanding resources I'd like to share with the request you take the time to review them (no more than an hour I suspect).

The first is a recent report by the Scientific Committee of the European Commission titled "Is dental amalgam safe for humans? The opinion of the scientific committee of the European Commission" under Mutter (as author). The link does not appear to work, but the full article can be found through the link on pubmed.gov. Please look at it. One very significant piece (I believe) is testing for mercury; they show that typical testing (hair and urine) may not show mercury accumulation in the body. I suspect a blood test of glutathione may be the best means (presently) to reflect on mercury body burden.

I also feel the best review of the many effects of mercury on the body is given in a 12 minute video at: http://www.thenaturalrecoveryplan.com/ . Take the time to watch this. It is well done. I plan to get other resources through this site and have also put the link on the right.

These two sources say much about mercury and the possible connection to Morgellons Disease. Please take the time to watch them. Happy healing, Joe

Blog/Radio Show With Dr. Omar Amin

Pam Crane will be hosting a show with Dr. Omar Amin this week. I hope to listen when it is broadcast, but I may have to listen to it after it airs.

Dr. Amin has done some of the most important research related to Morgellons (NCS) and was the key player in my recovery. I'm certain this will be a very worthwhile listen!



http://www.blogtalkradio.com/pamcrane/2011/11/03/dromar-amin-timeline-disease-toxens-parasite-whos-first

Morgellons Focus on Health
Dr. Omar Amin
Time line for the mark of causation in 'Disease' Such as Morgellons also known as Neurocutaneous Syndrome
Toxins? Fungus? Parasite? Who's First?
by Morgellons Focus on Health

Thu, Nov 3, 2011
Pacific 4:00PM

Call in number to as questions

(661) 621-7550


Thanks.

Blessings

Pamela Crane

www.Morgellonsfocusonhealth.com

Pamela@morgellonsfocusonhealth.com

Glutathione Testing

I found this short video related to easy and inexpensive means to see if you are mercury toxic. In it testing glutathione levels is recommended. I've not been tested for this myself but have had significant shifts in energy levels since starting to take glutathione. The link is: http://www.mercuryexposure.info/consumers/testing-for-mercury/glutathione/item/457-testing-glutathione-to-determine-mercury-toxicity

Brain Work Out

The brain is pretty complicated. Those who claim expertise in brain studies seem to be realigning and uncovering new understanding all the time. For myself, as a teacher, scholar, and having recovered from symptoms I believe are entirely connected to neurotoxicity, brain work is essential. When I'm not writing, reading, talking or listening, I like to try to exercise my brain in different ways. I don't entirely understand the brain, but I do know it feels right to "work it out".

We each have our likes and dislikes. I think it is helpful in several ways to try to get the gray matter up and running daily. Certainly some studies indicate it keeps us sharp and less likely to end up with dementia and such. For myself, it has also been an indicator of problems...deep problems likely related to my endocrine system.

Recently, I visited a local dollar store and got a puzzle book to challenge myself (I like sudoko but am less fond of crossword puzzles). Whatever I pencil through, I feel it's good for me. Of course, there's endless online possibilities. I also like to play cards, but have a hard time finding cribbage lovers (my favorite game). Another possibility is to take some courses at a local college or purchase coursework (as I did last spring through The Great Courses (a company which sells lecture series...I'm not much of one for lectures...but it works sometimes)).

You know your own likes and dislikes...whatever gets your brain buzzing and moving is worth doing. My suggestion is- Just do it!

Pay it Forward!

There was a movie that came out ten years ago or so. My girlfriend at the time got it out and we spent the evening watching it. Pay it Forward wasn’t an especially great movie, but the message was. The concept of having someone do good for you and you passing the good deed forward to others is powerful. Is it happening in the Morgellons world? You bet! I wanted to share some of the people I see passing it forward, sharing their knowledge and skills and trying their best to pay it forward to others. Here they are- some of the people I consider Morgellons heros.

Mr. Commonsense- Here is a man who has taken endless hours of his time to try to bring some common sense into the confusion. He has posted a array of useful information on managing and healing from symptoms. His blog has plenty of followers and endless hits. I usually try to direct sufferers towards his blog (http://morgellonspgpr.wordpress.com/) to find well organized and worthwhile sharing on all things Morgellons. His most recent entry suggest some action to get the CDC to share information on Morgellons. He asks us to "Stay tuned"...I will and hope you will too!

Pam Crane- Pam has acted as a link between sufferers and competent health practitioners. She has regular online blog/radio shows which provide a wealth of information and allows call ins for questions. Her most recent interview is found at: Morgellons Focus on Health Online Radio by Morgellons Focus on Health | Blog Talk Radio

Ramona at Healing Grapevine- Ramona shares excellent information on healing through balance, detox, herbs and remedy success. She gives her writing a personal spin and does not hold back from opinion. Check it out at: http://www.healinggrapevine.com/ .

Judith Knilan's- Wrote a book on her personal account with Morgellons and gave free access as an ebook (I have not been able to access this, but know others have. Give it a try with link at: http://morgellonspgpr.wordpress.com/2010/03/21/free-morgellons-e-book-by-judith-knilans/). She still contributes and shares as time allows (she is healing from cancer at the moment. Prayers and good thought are welcome!)

Others- I know there are others who have shared online. I cannot list all, but will make one general statement; it appears that all who document recovery or management of symptoms aggressively reclaim their bioterrain.

Future Hero= You! A common thread between people managing or eliminating these symptoms is detoxification. I know for myself it works and it appears I am not alone. I request everyone pursuing health document what they are going through. You never know who it might help. Pass it forward!

Clay, Movie and a Challenge

It's an eclectic title and reflects well on my thoughts this morning. I've just finished a week of house and chicken sitting for some friends. The rainy days (which were more than the sunny) gave me time to reflect and the sunny ones to plan. On one of the rainy days, I listened to Joyce Riley's Power Hour radio show (I wanted to hear what Trisha Springstead had to share)and was really intrigued by information on calcium betanite clay. I posted a link for a free viewing of the movie Food Matters; I watched it twice, so I give it a big thumbs up. Lastly, I wanted to offer a fun challenge involving some serious thinking.

Calcium betanite clay (also called living clay) is being used to assist in detoxing. The way it works is based on how the clay particles are charged; they draw heavy metals to them and bind. The clay can be drank to internalize and pull from the intestinal track. It can also be used in foot baths or, and this is what I'll be trying next month, can be applied to skin. Once on the skin either spend time in an infrared sauna or lay in the sun (weather and setting permitting). The clay will draw through the skin and simply wash all off. The expert speaking on this (forgot her name...can I call it a senior moment?)claimed great success. Trish Springstead is using this with some of those suffering from toxicity in the Gulf region with good results. I looked up the cost online and found you can get a pound of this for as little as $6. Give it a shot! Why not?

Onward, the movie Food Matters link was forwarded to me by Pam Crane (another Morgellons/ toxicity recoverer). If you can watch it for free today or get a copy of it. While the focus was on the importance of food and the role of nutrition in health, it also shared a good deal on detoxing (especially Gerson Therapy). The overwhelming theme was nourish the body and the body heals. All in all, it was very well done and provided excellent information. Two thumbs up!

Finally, with the change in weather and the coming holiday season, I thought I'd provide a challenge with a prize. As you may or may not know, I am a professional writer (among other things). My first book Grandpa and the Christmas Crib was released last year (and I am hoping is found at your local library). I also illustrated this book. What my publisher does not know is there are three Morgellons related images in the book. Your challenge is to find them. Sound like fun? Here's the deal, the first person to send the page number as well as what and how part of the image relates to Morgellons will win a signed copy of Grandpa and the Christmas Crib. You can send your answers to me through my main website: jwkeleher.com. I will let everyone know the winner through this blog. Good luck!

The Movie Food Matters

Pam Crane posted a link to this today and I watched it with my morning cup of tea. It has a ton of great information! It is available online for free for the next couple of days. Watch it at: http://www.foodmatters.tv/screeningeventcinema

Take care, Joe

Day Two of Lemonade Fast and Morgellons Update

I'm back in Pennsylvania. I've given notice to my renter and so will be moving back into my home in one month. I'm looking forward to being in my familiar and own space. Money is tight, but I decided to splurge and purchase a nice organic bed. I'd been thinking I would like to do a week long fast before settling back in and was offered the chance to house/cat/ chicken sit for some friends. It's a quiet country setting, so I'm planning to fast, relax and take in the quiet until Friday.

I really like the update on Healing Grapevine and thought I'd pass it on. It is at: http://blog.healinggrapevine.com/morgellons/morgellons-update/

Happy Healing, Joe

Radio Show with Pam Crane

I don't know if I posted this, but thought I should. This radio show originally aired in the spring. I thought some might like to listen. I was really nervous for several reasons. Here it is: http://www.blogtalkradio.com/pamcrane/2011/04/28/beyond-the-barrier-a-hypothetical-model-for-cause-and-progression-of-morgellons-disease

Get the Metal Out!

It's a landmark week. My theory related to Morgellons Disease is now in print (Explore! 20.5) for which I give much thanks to Crystyne Jackson, Explore! editor, for ongoing support and motivation (keep on rockin' the medical world!) I'm soon to end my over half year+ of couch surfing as I'll be moving back into my home in Wellsboro. And, finally, what you might be most interested in, I'm taking more steps towards cleaning the heavy metals out of my system.

I picked up an internet order of glutathione from one of my sister's homes (remember I currently do not have a real address); this was motivation by recent dialog on this blog and understanding glutathione binds with mercury to pull it out of your system. In discussing this with a health store pro, I was told Alpha Lipoic Acid would have the same effect at a lower cost (ALA promotes our own system (liver I think) to create its own glutathione). I'll use glutathione initially with the plan to shift towards ALA.

I have just over one month until I can move back into my shack, so I will be house sitting for friends starting next week. I plan to do a week long lemonade fast (I've done this twice before) along with colon cleanse. The Tao of Detox mentions the importance of a clean colon for any detox work to be effective. I hope to also get some algin as it is known to assist in pulling metals from the digestive track and begin this along with the fast.

After the fast and re occupancy of home, I will use my infra red sauna with sulfur soap daily along with cilantro tea (not the best taste but is said to help pull mercury and improve memory). I'll continue my daily walks (minimal one hour) and build my yoga routine. I may also start doing some wood runs again. Key is getting my health and energy back to where it should be.

With summer over and fall here, it feels right to pursue happier and healthier. It makes sense to get the metal out! Happy trails, Joe

A Book Worth Reading and Normal Communication in the Age of the Internet

You know I'm big on communication. I believe in the power of words whether they are said or written. Words are powerful and I suspect they were even from the first "Ug" or "Auua". I also solidly believe actions speak louder than words. So, words are powerful but actions are even more powerful.

I've already recommended Daniel Reid's book The Tao of Detox. I'd like to step it up a notch and say it should be required reading for anyone suffering from issues of toxicity. Form beginning to end the book provides the reader with clear guidance on how to tackle body maintenance in a world becoming overwhelmed with toxins. I've already handed my copy off to my massage therapist sister.

I mentioned my earlier recommendation by emailing the author and was impressed with his quick and Morgellons's specific recommendation of intensive alkalinization by bath. Here's a well published author and expert on the delicate balance between Eastern and Western medical thought taking the time to send an email off in my direction. It is obvious he cares. I wish there were more people with such credentials openly communicating with our crowd!

And, speaking of our crowd, I did make some effort to communicate with the CDC on their recent twitter session. I was hoping to see other Morgellon related tweets, but didn't. Am I trying to put a guilt trip on the Morgellons's community? I hope it doesn't come off that way. The real culprit of not making communication efforts is the CDC itself. I was pretty much ignored and given the brush off. When there are so many suffering and waiting on the results of such an important piece of research, how can this government agency refuse to openly communicate? Action or, in this case, inaction speaks loudly; to them we are not important.

I know there are real challenges in communicating online. I've tried my best to make my words worth reading. I try to keep my audience in mind at all times. Maybe, just maybe, we (the CDC, MRF, Morgellons researcher, Morgellons medical personal, and sufferers)should all take a deep breath and say what needs to be said...maybe online or maybe in person. Let's see if we can make communication normal. Let's see if we can end the suffering.

Knocking on the CDCs Door

Here's hoping the link below works(special efforts of Mr. Commonsense- cut and paste may work best). The CDC will be having another twitter session on Monday at 2pm Eastern time. I'm hoping a bunch of us can make attempts to get the when and where for the release of their Morgellons study. Be there if you can! Thanks, Joe


http://www.youtube.com/watch?v=vB-tTt9D6U0

Twitter CDC?

I've posted this message on Mr. Commonsense's Blog as well-

I’ve just signed up for twitter and, honestly, I’m still trying to figure it all out. I am following the CDC though and thought people might want to send messages asking when and where the CDCs report on Morgellons will be released. I’ve sent a couple already and wonder if they will respond….maybe numbers could force the issue? Since they are having a live session tomorrow with a “disease detective”, I feel it is a good time to ask.

Their message:
Wondering how CDC stops outbreaks? Ask a disease detective. Live chat 9/16, 2pm EDT. Send your questions @CDCgov.

Downtown NYC

On Friday my friend Liz and I visited Lower Manhattan and the Twin Tower area. We talked about where we were 10 years ago. I was at a conference in Albuquerque. She was in NYC relaying information to her coworkers in New Hampshire of what was happening.

Terrorism is ill defined and feels so clouded by politics. To me terrorism is the desire to build fear. I hope we can move as creations of God towards the opposite...towards love, peace, freedom and creativity. Peace, Joe

Two Weeks of Cat Sitting or Health in the City

Two weeks ago I was staying with my sister and her family (I'm feeling like a nomad these days). I'd assisted with some painting projects, baby sitting, and moving the heaviest desk I've ever encountered (I still hurt). My friend Liz invited me to the Big Apple to cat sit while she went on a trip; I found a ride on craigslist and considered it my destiny. I've made a few health related discoveries while in New York and felt they were worth a mention.

First I need to mention a pattern I've noticed. There are a lot of very physically active people living city lives. I don't think it was the same when I was a kid. Growing up in the country, it seemed visiting the city (Buffalo being the only one I was ever taken to) meant seeing a lot of inactive people. I may be wrong, but it seems somehow to have flipped. Many of the heavier, less active people I encounter now seem to be country dwellers. I'm not certain how or why this might be the case. Anyhow, seeing all of the runners, bikers, walkers and such in NYC made me think about this.

The last I visited Liz's, I went to a free yoga session at a center big on combining yoga and Thai Chi; I returned this visit and was disappointed at the way I was received. I could participate in yoga for $25 per hour session. I purchased a book from them, Meridian Exercises for Self-Healing by: Ilchi Lee, but decided I'd do yoga somewhere else. Once again craigslist came to the rescue; for 6 hours of cleaning and assisting in setting up a studio, I would be able to participate in 10 yoga sessions (thank you very much Loretta of Area Yoga Brooklyn). I've been able to participate in two fairly challenging beginner's sessions and may go for one or two more (it's just over a one hour walk to the studio and going eats into my writing time).

Another great health related find was a place called Start Point located in the Hispanic part of Brooklyn at 5th ave. and 53rd street. I stopped in to ask about their herbs and was invited to get a kind of acupressure massage on a infrared heated bed; I slept so well the night after this first session, I decided to return daily. It's a neat set up...friendly and inviting. They do a 15 minute talk in Spanish before every session on the beds, which I've been considering a free language lesson (mucho gusta!).

I also purchased a copy of The Tao of Detox by: Daniel Reid and, having read the first couple of chapters, am giving it my highest recommendation for Morgellons sufferers. Really it is great! Get a copy if you can or I'll loan you mine once I'm done.

I had hoped to connect with a Wilson's Temperature Syndrome specialist, but she emailed to let me know she is moving to Arizona. Sure, I was disappointed. I also have to say I'm surprised the Chinatown I was familiar with here some 15 years ago has changed greatly; it is mostly for tourist. So, some health related disappointments...but the good outweighs the bad.

Reclaiming Your Internal Environment- Part 6- The Progress, Challenges, and Stumbles

Though we seldom talk about it, when it comes to health in America we are conditioned to believe almost always a simple pill will make things right. If there was a pill to take away Morgellons, I'm certain many would opt to take it (and it would make about 95% of the medical world happier...not to mention the drug companies). Morgellons or HyperToxicity Syndrome or NeuroCutaneous Syndrome is truly systemic. My experience has been that the only real way to get well and eliminate symptoms (some which you may presently think have nothing to do with Morgellons) is to go after the beast and detox, detox, detox!

We have to be careful though. If you loosen mercury or other heavy metals from their molecular bind where they are currently and you overtax your detox system (such as kidney or liver), you may find yourself dealing with other health issues. Such toxins have to be removed with care and patience. It will take time.

I know in my efforts over the past 4+ years, I've had some major...feeling better, feeling better, feeling better...then suddenly oh, I'm feeling bad again. The best example of this would be my endocrine system challenges over the past year.

Obviously I wouldn't have gone over to Tanzania to teach if I though my health would be an issue. I had been feeling at the top of the world having taken up rock climbing and started some serious trail running again. I though all of my health issues were in the past and then stress overtook me. The students I would be teaching were from wealth and, having been raised on a farm with little, this certainly brought out some of my insecurities. While most of the staff were good people, there were enough game-playing coworkers to make my life difficult. I felt I had stress upon stress upon stress. Without reliving this extremely dysfunctional setting where the American male did not fit in, I will simply state I started to have some serious symptoms. Piecing it all together over time, I realized I was dealing with endocrine issues. It was a major stumble!

Still with 6 months of feeling like crap and getting no answers from the various doctors I'd visited, I needed to go through this challenge. I made it through another course of crappy symptoms and found my way back to health.

The thing about Morgellons and even related endocrine challenges is they are deep core issues of health. As someone who relies heavily on my mind working proper to teach and to write, I have felt completely broken at times (and these are the times I'm most likely to seek a closer connection to God); maybe this is for the best.

Given all of the challenges and stumbles, you may wonder is it worth it? I've got to say absolutely! I love life and living! If you've visited my main website (jwkeleher.com) and looked through some of my travels, you've seen a glimpse of my life after Morgellons. You can get through Morgellons. You can reclaim your internal environment and you can live a life more full than you have ever dreamed! It is out there. Reach for it! Enough of the exclamation points (my editor hates them)and enough on reclaiming your internal environment. Saint George fought the dragon and you can fight this! Carpe diem, Joe

Reclaiming Your Internal Environment- Part 5- New Habits to Build into Healthier Living

Remember when I said I think of us as bouncing blobs of water? Of course, we are much more. We are body and mind but also spirit. So, in considering new habits to maintain and boost health, let's consider each of the three pieces which make us who we are.

Body- The body is a complex machine. It really is amazing when you ponder all it does constantly to keep us bouncing along. Key considerations in habit building (or you could say discipline) are: exercise, food intake, water intake, air intake and other. For exercise consider both internal and external exercise. Western approaches to exercise often focus on muscle building without consideration for all of the other systems the body benefits from proper functioning of including but not limited to the circulatory, respiratory, and endocrine systems. Given all my recent health challenges, I believe the endocrine system is hit especially hard by the toxicity issues related to Morgellons. I vary my exercise though I make walking an hour each day a minimal approach. I like to jog, swim (though I'm not so good at it), climbing (when I can), hiking, yoga, and now...have a growing interest in internal exercise as understood in association with Chinese health practices. We each have our likes and dislikes, but I would highly recommend something to work out your insides (yoga, tai chi, Chinese internal exercise, etc) and something to work out more externally. Find what works for you and fit it into your schedule.

Mind- It is kinda teacher-ese to be saying I think working out the mind is a necessary part of every day...but it is what I believe. For myself my minimal approach for some time has been one hour of writing and one hour of reading (though my writing sometimes expands greatly). I also enjoy tinkering such as building or renovation projects (I've been playing with the idea of getting into tree house building...but at present have no tree to build upon). I am a tactile learner and really enjoy learning combined with hand work. Again, it comes down to what works for you. Figure it out and do it!

Spirit- Sometimes we need to be reminded, a balanced and wholesome approach to your spirituality assist the body and mind as well. When I finally have a home again (which I am hoping happens sooner than later...the backpack life is getting old), I plan to invest in one of those fancy, heavy serious meditation pillows (you know what I'm talking about...they weigh a ton, are usually round and are comfortable to sit on). I want to build meditation along with prayer into my daily schedule. As a Quaker, I enjoy having weekly access to a Meeting and hope for this wherever I next land employment. Your own spiritual/religious life should be built upon those things which feed your soul and lend themselves to building yourself in spirit.

Building habits and discipline into your life will assist in recovery. Think body, mind and spirit. Think what you enjoy and what works for you. Think wellness and balance and all things good. Happy healing, Joe

Reclaiming Your Internal Environment- Part 4- Dealing With Dental Toxins

If you've been following my blog and all I have to say, you know I believe my recovery is due primarily because of my removal of dental toxins. The mouth is the gateway to the rest of your body and dental materials your body does not tolerate are a means of slow poisoning.

Key to my recovery was the removal of amalgam fillings. Mercury is the second deadliest substance known to man. Too much of it and you are dead. While we have been told mercury in fillings is safe, I no longer believe it. Mercury needs to be removed and it needs to be removed safely.

Key to removal of toxins is connecting to a qualified biologic dentist. It may be you will have to leave the old mom and pop friendly dentist you have always gone to behind. Your health is too big of an issue to not take a stand. It'll cost more to go to a qualified dentist but it is absolutely necessary!

Your biologic dentist should ask you to get tested for dental toxicity (again costly but necessary). Talk to them about prep (what they recommend taking...at least vitamin C and chlorella), the procedure, and follow up. Instead of going through all of this, I refer you to an excellent article (actually better than anything I could write on it) by Mike Adams found at: http://www.naturalnews.com/007851.html .

I know it is not what many of you would like to hear, but I must tell you the symptoms will get worse before they get better. Though a biologic dentist will do everything possible to keep your mercury levels from going up, in removal there is likely to be a slight increase in mercury released into your system. Even the slightest amount of mercury can tip the scale with these symptoms. Just remember to keep the mantra going...these are only symptoms.

The process of cleaning out years of toxins from your system will take some time. Be patient. Know the steps towards cleaning out your internal environment will help make your life what it should be. We weren't put on this planet to suffer, we're meant to enjoy ourselves. Happy Healing, Joe

Reclaiming Your Internal Environment- Part 3- Your Home

I have several entries already related to this post. I spent a large part of last school year on a sub list, as I cleaned out toxins from my house in Wellsboro, PA (a pre and post article appears in the archives of Natural Home magazine- go to http://www.naturalhomeandgarden.com/ and search for "Pennsylvania Pick Me Up"). Assuming you have taken care of removing/ managing toxins in your home, I recommend several other steps in making your home effective in assisting in reclaiming your internal environment; these include utilizing feng shui, creating a sacred space and making detox related tools accessible without being overwhelming. While I am not currently living in my home (in fact I have been living out of my backpack for almost 6 months now), I will share what I learned living in my home last year.

I've had some ongoing interest in feng shui. While I don't believe in all aspects of it, I do think the general philosophy of creating a space of health and good energy makes sense. Simple things like room color make a difference. Getting rid of clutter is a "no brainer". I feel best in a clean, crisp, comfortable atmosphere (you'll get a sense if you look at my home in the NHM articles). Take care of these matters and keep your space healthy. It'll help.

I think a sacred space for prayer and meditation is helpful. I have a labyrinth in my backyard to walk through and quiet my mind (it is found in one of my early entries). I also consider my hammock essential; it is where I go when I need to relax my body and mind. Sacred space is a personal creation based on beliefs, needs and desires. Create what works for you. It can be as simple as a seat or pillow in the corner or as elaborate as your own backyard church. Create what you can and keep it sacred. God knows you need this space!

Some of my tools for recovery include: hand massager, yoga equipment, jogging gear, climbing gear, and a sauna. I try to keep materials handy without getting in the way (although the sauna does take up part of the dining room). Keep it accessible, neat and logical- everything has a proper place.

Your home should be a calm setting. I realize this may be easier said than done. Understanding the framework you are living in and working with it will make a difference. Good luck, Joe

Reclaiming You Internal Environment- Part 2- Opening Detox Channels

There's plenty out there on detoxing to assist in healing. As I view Morgellons as a condition due to toxicity, I am keen on sharing some of the basic knowledge I feel is worthwhile. In general, I view our bodies as bouncing blobs of water. Our blobs are only on this world for a short time; it make sense for our time to be as healthy as we can make it.

Let's begin. We need to think about what we are allowing into our bouncing blob of water. Keep our intake of food, water and air as healthy as possible is essential. If you live near know toxic exposure, realize it has effects on your health...if you can, move (as I did. It ain't been easy, but I made the decision my health was more important than my income. I moved away from the power plant area of the Four Corners). Eat right--organic (when possible), avoid known junk foods, no GMOs,...you know, there are endless sources of information on this. For water, get it as clean as possible. I recommend filters on drinking water as well as showers (your body will absorb approximately 5 cups of water each shower). If you are in an area where historic mining has taken place, sponge baths may be your best alternative (I did this for an extended time when I lived in Teec Nos Pos, AZ. My levels of uranium exposure increase in urine test and I realized this was likely to waters coming down from mountains with uranium tailing piles). Air quality should be good if not great; my recent job/hell on earth position in Tanzania including my asking about air quality right off the bat (the head of schools told me, "...the quality is good". He failed to mention my needing to drive through diesel traffic for close to two hours each day). I will discuss/review more on air quality in the home in my next entry. Now that we've explored the intake for our blog, let's look at the outtake.

Toxins leave the body in three major ways--sweat, urine and feces (stress is also a form of toxin. Traumatic issues from the past may need to be confronted. Forgiving needs to happen...you need to forgive friends, health professionals who do not understand Morgellons (very, very important!), family, and even yourself. As I have made use of the 12 Steps for recovery (and suspect I will always need to make use of them), I recommend their use. For today's entry I will focus on matters related to the body and not the mind/spirit). The skins is the largest organ and sweating away toxins is helpful. I like sweats and saunas weekly (if possible). After getting to the point of sweating, you must wash off toxins before the body reabsorbs them; this can be done with a sponge bath, filtered shower, or rolling in the sand (as I did when going to traditional Navajo sweats).

Key to successful detox from heavy metals (such as mercury of course), is to have detox channels for passage out of body open. The kidneys and liver need to be functioning well. It is very important to not have toxins getting stuck along the way out. Though I have found it useful and having a huge impact, enemas (especially coffee which is good for the colon, intestines, liver and kidneys) need to be done with care. I recommend going into this slowly. There are also numerous herbal supports found at local health food stores; be cautious with these too. I use milk thistle for my liver. Lymphatic drainage is important (I have an entry on self massage and recommend looking at it). Regular massage is useful; if you cannot afford to go to a professional massage therapist, I would invest in a palm held massage device (found online for about $35).

Exercise and discipline are helpful. One hour of walking/jogging/yoga or what have you per day is good. I also find one hour of meditation/prayer helpful; stress produces toxins and calm opens the body to release. I recently found a copy of The Complete System of Self-Healing by: Dr. Stephen T. Chang at a yard sale; I have been working on internal exercise and can only say, "Wow! This is definitely beneficial!" In truth, I now know the best approaches to exercise for detox and general health includes both internal and external exercise.

Well, we've covered a lot of ground. I know there is plenty more which could be discussed and look into. Please share what you have found useful along your own path. Of course, we are all individuals and need to find what works for us. A good health professional working with you on all health matters (including detox and opening detox channels) is, as always, recommended. Happy healing, Joe

Reclaiming Your Internal Environment- Part 1

As I sit and think about the steps one could take in reclaiming their internal environment, many avenues come to mind. I suspect some ways are better than others depending on our individuality and specific toxicity issues. Baseline testing through various companies could be an effective way of measuring progress, though I know financing such a venture may be less than ideal for those on a tight budget.Keeping blanket goals for anyone seeking a cleaner internal environment, budgetary concerns and approaches I found to have "the most bang for the money", I will present six parts on the reclaiming process. My suggestions are by no means all inclusive and are certainly open to improvements; still here's the break down in topics for my sharing.

Part 1- Introduction
Part 2- Opening Detox Channels
Part 3- Your Home
Part 4- Specifics Related to Dental Toxicity
Part 5- New Habits to Build into Healthier Living
Part 6- The Progress, Challenges and Stumbles

As always, I suggest those suffering from toxicity (and let's face it...who isn't)bring a medical professional into the picture to share before implementing any health related plans. Your suggestions are very welcome at any point along the way. Let's hope for happy trails, Joe

Treatment of Morgellons Sufferers

I have been writing an essay on the treatment of Morgellons sufferers. It has not been an easy subject to approach. In an article titled "Delusional Infestation", Freudenmann and Lepping give step by step suggestions for handling those dealing with these symptoms (found at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2772366/?tool=pubmed ). It is easy to get angry at their suggestions and judgmental wording...instead I hope to design a better approach. One piece I am suggesting is a questionnaire. I put it below for review and suggestions. I want it to be a means for positive progress (both for the patient and the medical professional). Thanks for any input! Joe

Morgellons Suggested Questionnaire
Name _______________________ Date ______________
List all symptoms experienced (expand on back if necessary)- ________________________________________________________________________________________________________________________________________________________________________________________________________________________
When did symptoms begin? ___________________________________________
What time of day and what setting do symptoms regularly occur? ________________________________________________________________________________________________________________________________________________
Describe progression of symptoms. ________________________________________________________________________________________________________________________________________________________________________________________________________________________
Location of crawling sensations include: ________________________________________________________________________________________________________________________________________________
What are patterns related to crawling sensations? Do they always start in one location? Are they worse in certain areas? Do they seem to spread across certain areas? Please describe: ________________________________________________________________________________________________________________________________________________________________________________________________________________________
Please describe life history of health. Note any times you have been in the emergency room and any diagnoses. Give approximate age, date or distance into past (ex. 3 years ago, etc.). ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________
Locate any skin lesions on body (chart on drawing)







Give any more information you feel needs documentation. ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________
THANK YOU FOR CONTRIBUTING TO THE UNDERSTANDING OF MORGELLONS

Wilson's Syndrome

I had planned on beginning a series titled "Reclaiming Your Internal Environment". but have something else to share first. I have figured out what I have been suffering from for 5 months. The symptoms fit and the self testing justifies the diagnosis, I have a condition called Wilson's Syndrome and it relates to the thyroid.

My symptoms were extensive but primarily include: exhaustion, racing heart, spaciness (brain fog), loss of memory, lack of concentration, tingling in limbs, and an overall feeling of just not being well. There are other symptoms but those are the major. Several days ago, an internet search brought up thyroid problems as a possible cause. I search through some medical books at my mother's place and look up hypothyroidism. At the end of the entry all my symptoms were listed...along with a self-test. The test is simple. You take your temperature three times each day (for women do not test near your period...it effects results) for several days (3 to 5). Average each day and then average your overall temperature. If your body temp averages below F 97.8, you have Wilson's Syndrome.

I mentioned this to Trisha Springstead, RN and Morgellons hero (she has helped a ton of people), she said she thought the overall condition related to the endocrine system. I think she is right.

I highly recommend doing a self test for this Syndrome. I suspect it somehow relates to Morgellons. It is not a condition you want to have for an extended period undiagnosed. You can also find much information at:http://www.wilsonssyndrome.com/ .

I am very happy to have figured this out. I have been to a total of four doctors here in the US...none of them even mentioned the possibility of my suffering connecting to the thyroid. It amazes me what we have to figure out for ourselves. Morgies, please let me know if you find Wilson's Syndrome is part of your health issues...the more we figure out the patterns, the more we help our tribe.

Diet and Methylation Speculation

It has now been four months since my return from Africa. I still am not feeling 100% well (although okay at times). I've met with four separate doctors. I've been tested for liver problems, kidney problems, adrenal problems, HIV ...and wait for results of parasite testing and other. I am sick and tried of being sick and tired, as the saying goes.

While I don't like to think about it, I have a family history of cancer. I now wonder if it is what really needs to be considered. My immune system was taxed greatly while overseas and it might have put me out of balance. So, in considering cancer, I looked at ways to beat cancer without chemotherapy. One way is diet; changing our internal environment from acidic to alkaline.

I wondered about the possible relationship between diet and Morgellons symptoms. If the Barrier Theory is correct, could an acidic environment add to mercury changing from inorganic to organic species? It ends up it could. There is a process in acidic bodies of water called methylation. I'm speculating methylation would alter inorganic mercury to methylmercury. Of course I'm not entirely certain of how all of methylation occurs or the byproducts, but it is worth considering.

There are a ton of books and online resources related to PH balanced diets. I know I need to be better at getting my internal environment less acidic. I think for those of us fighting off toxins, parasites, and other imbalances, alkaline promotion makes sense.

Detox Setting- The Home

Last year I spent almost 4 months removing toxins and making my home a comfortable place to live in. My plan had been to find work teaching and continue on my detoxification. Things never go exactly as you plan. Not finding true work, I went to Africa to teach and got very sick. I feel like I've taken some steps back in getting my health in order.

I do believe a key factor in regaining health is to eliminate as many toxins from your life as possible. I did do as much as I could with the prompting of Natural Home Magazine. They wrote an article on the initial assessment of my structure and then also did a follow-up article. I've provided the links below, but will add NH has excellent related articles on good cleaning materials and keeping your home healthy. They're a great magazine!


http://www.naturalhomeandgarden.com/Green-Remodeling/Pennsylvania-Pick-Me-Up.aspx




http://www.naturalhomeandgarden.com/whole-house-remodeling/can-this-home-be-greened-pennsylvania-pick-me-up-completed.aspx

Dave Wilcox- Show the Way

I hope this link works. I sometimes get fuzzy brained when trying to do cyber- activities. Anyhow, the lyrics say it all.


http://youtu.be/cy0LBGTYyfg

Comparing Tribes: HIV/AIDS and Morgellons Part 2

Before getting started on a short comparison between the HIV/Aids and Morgellons Tribes, I wanted to update on my own health. While I am less than perfect (symptoms seem more invasive at night), I’ll have a good day or two and then begin to feel the symptoms of whatever I’m carrying again. I have an appointment lined up with a tropical disease specialist in Rochester in 10 days; I am hopeful he will have answers and point me in the direction of complete health.

My comparison of the Tribes comes from thoughts of having HIV (though as I said last time I tested negative). I learned from my Morgellons’s experience to make use of the internet as a tool. Assuming I would find out I had HIV, I began asking medical professionals for direction. I also took the time to look into online support from other sufferers. Of course, I also looked for possible cures.

While there are many “Tribes” of disease sufferers found online, I find Morgellons and HIV/Aids similar in the generally accepted diagnosis of “incurable”. I know for Morgellons this is not true (see my own story “Hell and Back Again” as well as a growing number of other stories) and there is a recent case of a German man who was HIV positive for 16 year and, after a bone marrow transplant and chemotherapy, is now HIV free. Miracles do happen!

One of the surprises I found among the HIV/Aids Tribe is a prevalent approach to live life fully. They have get-togethers, dances, cruises, and even marriages. My heart goes out to these individuals in the face of such a condition. They are a good example to all of us.

The only organized Morgellons event I know of is the now annual Scientific/Medical Conference on Morgellons Disease taking place in a church conference center in Austin, Texas (it is something, but strikes me as a little sad). I know there are some support groups out there. And, of course, there are online support groups (my opinion…some good, some bad). Yes, we need more discussion among the medical community, but we also need some positive means of connecting as individuals for fun!

One other comparison to be made is the medical worlds view towards these separate camps. It is disturbing there are still peer reviewed and accepted articles related to Morgellons being delusional. When will the tides turn? Of course, this one piece the HIV/Aids Tribe has as an advantage; the medical world knows what they have is real and they have the means to diagnose it. In comparing numbers of medical research found on pubmed.gov, the current number of pieces dedicated to Morgellons is 30 (many of the delusional camp)and HIV/Aids is 97,891.

What can we, The Morgellons Tribe, take from considering the HIV/Aids Tribe? Let me share my opinion.

- Open to faith, let go of fear (though I feel both tribes are doing this exceptionally well)
- Live life as fully as possible (however, I do not recommend a trip to Africa)
- Organize, support, and assist each other- A Morgellons’s Cruise? Why not!
- Let go of anger, open up to hope
- Build knowledge of medical condition
- Share what you learn along the (document your own story)

We have much to learn from one another. Certainly, sharing within our own Tribe helps. I hope we can expand our thoughts and prayers to others who also suffer beyond the Morgellons community. Peace to you with HIV/Aids.

Comparing Tribes: HIV/AIDS and Morgellons Part 1

If you follow my blog, then you know I've spent much of this school year in Africa and returned to the US after becoming ill. I've struggled through some bad symptoms which seem to come in waves.

Two weeks ago I remembered an incident which took place in Arusha, Tanzania. I had purchased a hair trimmer from a street vendor and, after finding it didn't work, went back to get my money returned. I got angry and started shouting at the man and, as seems to be common in Africa, a crowd circled around. One of the men told me he would get me to a barber (though it sounds strange, I believe he had "bewitched" or hypnotized me. I cannot remember has face...only his hand gestures and voice). I ended up at the local market which is as dirty a setting as you can imagine. Knowing one in six is estimated as infected with HIV in Tanzania (which is actually lower than much of Africa), I would never have freely chosen to go to such a setting where blood could easily be transferred.

Anyhow, the memory of this incident flooded my mind as my health recently worsened and had symptoms characteristic of HIV. Once again, I felt I would have to confront a condition considered incurable. I set up a date to get tested and assumed the worst. I won't leave you hanging. I was tested yesterday and, thank God, I do not have HIV!

One of the HIV/Aids online support groups uses "Welcome to the Tribe" as their motto. I like the idea of a tribe. It is a comfort to those suffering, I am certain. A Morgellons tribe needs to form. In my next entry, I plan to compare the tribes; I think we could learn much from understanding each other.

Morgellons's Break

Since documenting my recovery and having it published 3 1/2 years ago, I have researched, written, shared, and spoke about Morgellons almost nonstop. I've decided it is a good time for a break. For how long, I'm not certain. I've blogged on plenty and invite you to look through the many entries. I also know there is plenty on other blogs worth a look.

My best recommendation to those of you still suffering is to keep positive, know what you believe, document all you are going through, find a best approach to clean out your internal environment, and keep your eyes to the horizon. Answers are coming!

Take care, Joe

Communication

Sometimes I feel like I've waken up in a science fiction novel, sometimes a comedy and other times a tragedy. The situation with Morgellons Disease is hard enough to face, but the communication and mis-communication makes it doubly so.

While I consider myself long beyond the somewhat accepted Morgellons's symptoms set, I still have health issues. I blogged on my recent adrenal gland concerns. My system is still out of whack and I am hoping for answers, but them seems to come so very slowly.

Communication in relation to Morgellons is incredibly difficult. Who can you talk to? 85% of the medical world is still willing to call the condition delusional. Those researching the condition cannot openly discuss related matters (I've been told there are legal matters to consider). There are snake oil sales people claiming cures all over the internet. Still, there are many reason to see the glass as half full.

There are a number of excellent blogs and websites dedicated to discussing and better understanding Morgellons. I'll list a few I've found worthwhile:
http://hypertoxicworld.com/ - Pam Crane offers a wealth of information and is excited to be part of the growing communication network among Morgellons sufferers and researchers.
http://morgellonspgpr.wordpress.com/ - Mr. Commonsense has been a key player in open sensible communication within the Morgellons community. He has a seemingly unending amount of information related to the many angles of Morgellons research.
http://morgellonsaid.wordpress.com/ - Morgellons aid has a great deal of information related to cleaning out your body and reclaiming your internal terrain. Its is an excellent source of information.

There are some exceptional medical professionals working on the Morgellons problem. Without giving names, I would suggest listening to those who appear to understand the many facets of Morgellons.

The more we talk and think and listen to each other, the better we will tame this condition.

Exercise Shift

My recent concerns of adrenal exhaustion are causing me to shift my exercise focus. I had plans to continue jogging and even motivate myself towards running some 5ks or such. I tend to overdo and push myself even when I feel beat. I need to change my thinking towards physical activity.

My understanding of the adrenal glands is they kick in as you kick in. Dr. Larry Wilson on educate-yourself.org cautions on the role of exercise in those suffering from burnout, "Vigorous exercise can be attractive to those in burnout. Exercise temporarily makes them feel better. While it may provide a boost, in the long run vigorous exercise further exhausts their bodies. People in burnout need to reduce exercise, often to a minimum in order to conserve their energy and allow the adrenals to rebuild. Exercise requires energy and adrenal reserves that people in burnout do not have".

Wilson's explanation of appropriate exercise is brief, "Gentle walking is beneficial. Vigorous exercise depletes the adrenals. Deep breathing and stretching, yoga or Tai chi do not deplete the body. Exercise to relax rather than build muscle".

I plan to expand on and rebuild my yoga routine. The importance of rebuilding the adrenals and opening to detox make it especially appropriate. As with so many pieces of the Morgellons puzzle, patience and routine have their rewards.

Nurses, Teachers and Adrenal Exhaustion

It has been an interesting week (not always a good thing). I had some health issues midweek which prompted me to getting a medical check up and having blood testing done to check on kidneys and liver. I'll have the test results this week and hope to hear all is well.

My health issues made me think of a recent conversation with Pamela Crane from Hypertoxicworld. I mentioned my chelation work and she said something along the lines of, "I'm sure you have all of the support you need for your kidneys and liver". I don't remember my response, but, honestly, I haven't focused much on some of the main exits for toxins. So, now I am wondering if I stressed out these organs. I need to work on strengthening them.

Typical of the way things work for me, I headed to the local health food store to get some cilantro tea (helps memory and pulls mercury from system)and cold pressed sunflower seed oil (google- oil pulling) as recommended by a friend in the health profession. I thought these would be a good start at simple ways to detox further. As I was leaving, the cashier threw in a copy of Better Nutrition Magazine.

B.N. (May 2011) has an excellent article on adrenal exhaustion and wondered about the possible connection to Morgellons and my present kidney/liver concerns. The article mentions the adrenal glands are located on top of your kidneys. So, if your body is working at eliminating mercury, it seems logical the adrenals might be effected.

Stress is key to activating your adrenal glands. I feel my Morgellons symptoms first started after extensive and intensive stress. Your body produces cortisol to help soften the effects of stress. If the adrenals are pumping nonstop for extensive time, eventually you body cannot produce cortisol.

So, I am now wondering about and thinking if professionals known to have extreme and prolonged stress, such as teaching and nursing, are developing symptoms initially in part from adrenal exhaustion. I am picturing a cycle of mercury to kidneys, adrenal pumping, cortisol exhaustion and Morgellons symptoms. Make sense?

I've had five emergency room visits where my heart was racing (four before Morgellons symptoms developed). I was told after the first visit (where I was absolutely certain I was about to die) I needed to eat more bananas and green vegetable (I was low in potassium). This cycle could account for my unexplained hospital visits...and it also may account for so many nurses and teachers having Morgellons. Again I ask, make sense? I hope so.

I recommend reading the article in Better Nutrition. I'll list the vitamins and herbal remedies recommended (please check with your medical professional before implementing). Vitamins include: B-complex, pantothenic acid, and vitamin C. Herbal supplements listed include: licorice root, ashwagandha, rhodiola rosea, and eleutherococcus senticosus (please keep in mind B.N. is meant to promote herbal sales).

Remember to talk with your primary health care professional. Peace, Joe

Blogtalk Radio Show

Pamela Crane has invited me to speak on a blogtalk radio show. I've tried to cut and paste from her site announcement and still it comes out not quite right (I must confess I'm not cyber-savy). Anyhow, the information is below. I'm curious how the show will go.

Hope you're there- Joe


Coming Soon!

Joseph W. Keleher- Writer,Teacher, and World Traveler
Airs on April 28, 2011 4:00 PM Pacific Time

Guest call-in number 1 (661) 621-7550
To Simply listen on the Web click below
http://www.blogtalkradio.com/pamcrane/2011/04/28/beyond-the-barrier-a-hypothetical-model-for-cause-and-progression-of-morgellons-disease


morgellonsjoe.blogspot.com/
Beyond the Barrier: A Hypothetical Model for Cause and Progression of Morgellons Disease

The author proposes the symptoms set often referred to as Morgellons Disease is the result of increasing
inorganic mercury levels beyond the blood/brain barrier (hereafter referred to as the Barrier Theory).
Joining Joe to add depth to his research will be Patricia Springstead RN, and her husband Dr Richard Springstead.

The Power to Forgive

I know I have said it before, but I'll say it again. I think we are on the verge of understanding Morgellons for what it truly is. I know that ever day without answers to those suffering can feel like an eternity. Let's consider answers are near at hand. What can we expect?

If we suddenly are given the absolute answer of what Morgellons is about, the first shift would be one away from understanding cause and towards designing a best and most affordable route to health for sufferers. This needs to happen quickly and sensibly.

If the issue is found to be toxicity, I suggest sufferers make health and not anger priority number one. I am not suggesting anger isn't justified. What I am suggesting is anger will not help in healing. Everybody deserves to heal.

If the cause is found to be mercury, as I believe, can we approach the future as a challenge? Can we forgive the doctors, researchers, dentist and others for questioning, labeling, and degrading? It would be an enormous challenge for Morgellons sufferers as a whole, but also as individuals.

I know there is a power in forgiving. There is also a power in asking to be forgiven. I believe peace can be found. Whatever your beliefs, bring forgiving into the formula towards wellness.

Grocery Shopping AKA Treasure Hunting

I've probably said this before, but I'll say it again. Think of your body as a bouncing blob of water. Your job is to clean out the toxins, while not letting new toxins in. Sounds simple, right? Think again.

Toxins may make their way into your body through water (not just drinking but also bathing), air, and food. Each area of potential toxins needs to be considered. When I go shopping for food, there are a couple of things I try to keep in mind (though I could be better...especially at avoiding potato chips). So, here are some pieces of what I try to keep in mind as I go to the grocery store.

1) Stick to the outside aisles- I try to limit the items I get from the inner shelves of a super market. Vegetables, fruit, and meats are usually to the outside. Things on the inner shelves are meant to last and more likely to have preservatives.

2) Buy green produce- I try to get greens every time I go to the grocery. If you have access to a farmers' market, get good fruit and veggies there (in Africa I would go to the market in downtown Arusha). Organic makes sense if you are eating the skin (for example, organic bananas make less sense as you take off the peelings anyhow). A recent study showed strawberries as having up to sixteen types of pesticides on the skin.

3)Read the labels- If you cannot pronounce the contents on a food label, it is best avoided. Look for any sign of heavy metals (such as aluminum). Keep in mind you want only the best for your body.

4) Create a shopping list before you go...and stick to it!- Make your shopping list on a full stomach. Recheck based on foods you are certain will benefit your health. Stick to your list and do not stray.

I could use input from someone who really knows nutrition. The trip to a typical grocery store feels like a treasure hunt. I'd like to believe I do a great job. I know I could do better (especially avoiding the chips). Good luck on your search.

My Theory on the Foundation of Morgellons

I have worked out my thoughts on the foundation of Morgellons. It's pretty simple really. I think the primary symptoms are due to mercury changing from inorganic to organic to inorganic. In the organic state, mercury can move beyond the blood brain barrier. It may accumulate beyond the barrier in an inorganic state. As amounts beyond the barrier increase, the symptoms worsen.

I took about a week to write up this theory in hopes of getting it published and viewed by those who need to consider it. A number of medical doctors have been reviewing my writing this past week (I'd like it to be presented the best it can be). Anyhow, in seeking feedback, Pamela Crane of Hyper Toxic World asked if I'd be willing to be a part of a related radio show along with Patricia Springstead RN and her husband Dr. Richard Springstead. It'd be taped (and first aired I think) on April 28th. Here's the link to promote this: http://www.blogtalkradio.com/pamcrane/2011/04/28/beyond-the-barrier-a-hypothetical-model-for-cause-and-progression-of-morgellons-disease . It should be interesting for all involved.

Crawling Sensations, Fibers and Other Noted Morgellons Syndrome Symptoms: Another Theory for Sufferers to Consider

This was posted some time ago on the blog Morgellons-A Mudane Approach. I am currently working on a better presentation of this theory. I made one glaring mistake and I noted it in parenthesis.



I am not a medical professional. Let me repeat that. I am not, never have been and have no desire to ever become a medical professional. I might best be labeled a reluctant participant, as I suffered from Morgellons Syndrome Symptoms.

I have done my best to document what I went through (see Keleher 2008 “Hell and Back Again”). I wrote about connections to mercury and these horrific symptoms. I’ve angered medical professionals and sufferers. I’ve lost some old friends. I’ve found some new friends. I’ve written, emailed, and spoke on the phone with others who suffer. I’ve cried a bunch and still do (I don’t exactly know why).

I know it is possible to get well. I know what I suffered from and what I think most are suffering from is mercury as a neurotoxin. It is treatable with chelation and changes in lifestyle.

What I share are my thoughts. Yes, it is speculation. It is theory related to symptoms I had and you may still have. In reading be warned there are many “I think”s and “I believe”s. It’s all theory; it may be right or it may be wrong. Still, I feel compelled to share.

The Cause
I believe the recent growing numbers of those suffering from Morgellons symptoms is due to two ingredients- toluene and mercury.

Toluene is found in glues, methamphetamines and cocaine(this is not true....what I should have said is these are potentially interactive with mercury). I believe the toluene found in dental adhesives, and connected to symptoms by Dr. Omar Amin, correlate with a surge of sufferers of these symptoms (and possibly via prenatal passage the exponentially growing number of children with autism, ADD and ADHD).

I think toulene interacts with mercury to allow passage of this toxin into the nervous system. Toluene may dissipate after carrying mercury into the system leaving deposits of mercury. The primary source of mercury in the mouth (though there are other sources causing mercury increases including some skin creams, coal burning power plants, and historic mining activities) decreases as secondary deposits in the nerves increase.

The associated symptoms of this neurotoxin can be viewed as occurring in stages with new symptoms added as secondary deposits increase. The stages, based partly on my own experience, but also drawing from the experience of many others, might look like: 1) depression and panic attacks (typical symptoms of neurotransmitter blockage), 2) bloating, heart palpitations, and exhaustion, 3) crawling sensations, 4) fibers and skin lesions….and so on.

All of the symptoms noted with Morgellons, except crawling sensations and fibers, have been shown to be associated with mercury poisoning; because of this, I want to share how I think these two symptoms form.

Crawling Sensations
In the earliest onset of the “bugs”, I had faint flea-like zips across my scalp. I believe this was mercury pathways forming within the nerve cell network under my skin.

As the secondary levels of mercury increased, the sensations of crawling began. My crawling always started each night at the rear, right occipital area of my scalp (in journaling, at that time, I referred to the spot on my scalp as the “Mother Ship”); this area correlates with the low spot of my skull when resting (I have a preference for sleeping on my right with my head cocked back). The extreme density of mercury I believe was pooling.

Crawling typically began as the sun was setting and there was a change in temperature. Within weeks, the crawling expanded to my groin and bottom of my feet. Eventually my whole body had the sensations. It was during this time that I was diagnosed with sheet mites and scabies (and found out about something called Morgellons).

I believe as levels of mercury further increased, the crawling became more pronounced and expanded throughout my body. The sensation was especially disturbing when it began in my ear canals and nostrils.

I think the crawling is due to the expansion and contracting of mercury within the network of nerves. I picture it as one spider-shaped cell after another filling and twitching as mercury moves through (causing a kind of “cartoon effect” movement); one sufferer described this observed movement as certain proof of parasitic infestation. I still get a faint twitch occasionally at the base of my feet (but it feels different and I suspect it relates to nerve repairs and not mercurial movement).

If the Morgellons symptoms occur in stages related to increases in mercury, then I arrived at one of the middle stages. I never found fibers projecting from my skin or had any lesions. I’m thankful for this.

Fibers
I think the fibers are the result of repeated cell damage repairs from mercury expansion and contrasting through the nerve system. A weak spot may have mercury break through and this will “scab” over. The fibers eventually poke through as they have nowhere else to go.

Final Words
I know there are many theories out there. Mine is one among many. Take it as such.

Morgellons is an especially cruel condition. In addition to the symptoms, the medical community has not been especially kind. The sensationalism of the media doesn’t help. Isolation and lose of connections to other people is difficult. There is one thing though that especially irritates me; I cannot stand that there are people taking advantage of the vulnerability of many sufferers. For those snake oil sales people making money off this condition, someday you will get yours; it is true what we do to others we do to ourselves.

For those suffering, be careful of the sharks, keep faith that answers will come soon, and always, always keep an “attitude of gratitude” for all you have. You are not alone and things will get better! I wish each and ever one of you a clear path towards health.

Mercury in DOP Accounts

This piece was written several years ago. I do believe Morgellons Disease and most DOP accounts are documenting the same symptoms set.



I noted likely connections to mercury while reviewing some early DOP (delusion of parasitosis) accounts. While it is difficult to draw a direct line between mercury exposure and the symptom set once referred to as DOP, enough probable connections exist to merit a review by a qualified medical researcher (or researchers). Patient exposure falls into use of mercury as a medicinal for treating syphilis and use of cosmetics containing mercury. Each is briefly discussed below. As mercurial skin creams are still in use in some parts of the world, some relevant cases are presented.

Syphilis
Mercury was used to treat syphilis over a span of 450 years until the introduction of penicillin in 1943 (Tilles and Wallach 1996: 501- 10). Several cases documenting DOP in Wilson and Miller (1946) make mention of syphilis. Case 38, “…had syphilis at the age of 40 and received standard treatment for two years” (Wilson and Miller 1946: 51). Case 41 “…had syphilis at the age of 36 and had five years of treatment” (Wilson and Miller 1946: 52). While mercury as treatment in Case 38 and 41 is not stated, it is likely it was used. Case 46 does document mercury playing a role as, “a ship’s captain (who) complained of itching and creeping sensations which involved the face severely, but all parts of the body had been affected at times. The disorder had begun twenty years previously with a crawling sensation about the genitals and perineal region. He believed pubic lice to be present at the time but could never find them. He tried strong mercurial ointment, and within a day or so this medication had ‘driven them all over the body’” (Wilson and Miller 1946: 52).
There also appears to be some connection between patients suffering from a condition called syphilophobia and DOP. “Syphilophobia is a psychiatric symptom which may accompany or precede all stages of mental illness, and is analogous in all features to the delusion of parasitosis” (Macalpine 1957: 99). For unclear reasons, Wilson (1952) categorizes DOP with syphilophobia. Self-treatment with mercurial ointment is a possibility.

Cosmetics
Some early cosmetics had mercury as a key ingredient. A dated source itself states, “Despite the fact that topical mercury preparations were condemned as both useless and dangerous almost twenty years ago, these creams are apparently still available” (Oliveira et. al. 1987: 304). For unknown reasons, mercurial skin creams are still widely in use throughout Africa, SE Asia, many Arabic speaking countries, and Mexico (see related research under search of “mercury skin cream” on Pubmed.gov).
Cases 5 and 6 presented by Wilson and Miller in addition to having DOP symptoms had vitigo (irregular pigmentation likely treated with mercurial, skin-whitening cream) (1946:47). Documented commonalities between cases states, “’bugs’ may come out of such common household items as toothpaste, petroleum jelly, or cosmetics” (Schrut and Waldron 1963: 429). Also noteworthy is, “The typical patient with delusion of parasitosis is a woman over 40 (the condition is three times as common in women)” (Br. Med. J. 1977: 790); this pattern could relate to prolonged use of cosmetics.
In a large scale study of dermal effects of skin whitening creams, “of the 368 women questioned…main skin complaints included dermatophyte infections (n= 105) and scabies (n= 69)” (Mahe’ et. al. 2003). Another study of a condition found in Nigerian patients called “Ode Ori” is described as, “crawling sensations in the head and body, noises in the ears, palpitations and various other somatic complaints” (Makanjuola 1987). Similarly, Ebigbo presents “heat in the body and head; crawling, heavy and biting sensations” found in Nigeria (Ebigbo 1993:396- 401).
Mercurial skin creams are still in use in Mexico (also in US border states. See CDC study “Update: Mercury Poisoning Associated with Beauty Cream – AZ, CA, NM and Texas” 1996). The US distribution map of Morgellons Disease (which is widely accepted by the medical community as the same as DOP) on Morgellons.org shows higher concentrations in US/ Mexico Border States.

Discussion
I am not a qualified medical researcher nor am I objective in presenting such information as connections between mercury and DOP symptoms (see documentation of my recovery from related symptoms in “Hell and Back Again” Keleher 2008). None the less, I cannot help seeing connections and possible connections throughout the medical research on the symptoms set labeled DOP (and other times Morgellons Disease) and mercury. Certainly, some of the connections in this paper as well as an earlier paper (see Keleher 2008) are speculative. My background as a researcher is in the admittedly soft science of archaeology. My hope in presenting this and other information is that a qualified medical professional (or professionals) will further the investigation.

Sources:

Center for Disease Control and Prevention, "Mercury Poisoning Associated With Beauty Cream- AZ, CA, NM and Texas 1996." MMWR Morb. Mortal Weekly Report 45, no. 1 (1996): 633-5.

"Delusions of Parasitosis." British Medical Journal 26, no. 1 (1977): 790-791.

Keleher, Joseph W.. "Hell and back Again: An Account of Morgellons Disease and Its Cure From a Former Sufferer." Explore! 17, no. 4 ( August 2008):

Keleher, Joseph W.. "Patterns in Early Morgellons Disease Considered as Effect of Mercury Exposure." Explore! 17, no. 6 (December 2008):

Mahe’, A, Ly F, Aymaid G and Dangou JM. "Skin Diseases Associated With the Cosmetic Use of Bleaching Products in Women From Dakar, Senegal." British Journal of Dermatology 148, no. 3 (March, 2003): 493-500.

Makanjuola, RO. ""’Ode Ori’ A Cultural-Bound Disorder with Prominent Somantic Features in Yoruba Nigerian Patients." Acta. Psychiatric Scandinavia 75, no. 3 (1987): 231-6.

Macalpine, Ida. "Syphilophobia: A Psychiatric Study." British Journal of Venereal Disease 33, no. (1957): 92.

http://www.morgellons.org Internet: accessed 27 October 2009

http://www.pubmed.gov Internet: accessed 31..October 2009.

Schrut, Albert H., MD and William G. Waldron. "Psychiatric and Entomological Aspects of Delusory Parasitosis." Journal of the American Medical Association 186 (1963): 429-430.

Sneddon, I. B.,. "The Mind and the Skin." British Medical Journal (March, 1949): 472-5.

Tilles, G. and D. Wallach. "The Treatment of Syphilis with Mercury: An Exemplary Therapeutic History." History of Science in Medicine 30, no. 4 (1996): 501- 510.

Wilson, J. Walter and Hiram E. Miller. "Delusions of Parasitosis." Archives of Dermatology and Syphilology 54, no. (1946):

Patterns in Early Morgellons Disease Considered as Effects of Mercury Exposure

This article was published several years ago in Explore! (a journal for medical professionals). It has been posted online in several other places (One discussing stained glass production wasn't well researched. There are over 50 kilometers of tunnels under the city of Lyon, France which were used to keep silk fabrics dry. From the mid 1500s until late 1700s the area was best known for weaving...especially curtains).







Kellett’s 1935 article “Sir Thomas Browne and the Disease Called Morgellons” while giving background and contextual information for Browne’s observations also reviews other historic accounts of this condition. The patterns emerging from the documentations suggest a cause/effect relationship with mercury. Recent accounts of Morgellons symptoms are not included as it is uncertain whether historic accounts are documenting the same condition as present day Morgellons.

What is Morgellon’s?
Morgellons was a name used by Sir Thomas Browne for a condition he had observed in the Languedoc region of France in the early 1600s. He describes the symptoms as, “…harsh Hairs on their Backs, which takes off the unquiet symptoms of the Disease, and delivers them from coughs and convulsions” (Browne 1674). More recently, Mary Leitao reintroduced Morgellons Disease for a list of symptoms including fibers and “bugs” her son had (DeVita-Raeburn 2007: 1-2).
While the primary characteristics of this mysterious ailment have been the bug or worm crawling sensations and fibers, hairs, or bristles erupting from the skin, there are other symptoms included in the historic documents such as neurological (Browne 1674, Faventinus de Victoriis 1574, Montuus 1558), “fiber” locations (Browne 1674, Crocker 1884: 704, Guillemeau 1635, Pare’ 1564; Schenckius 1610) and smell (Guillemeau 1609). When compared with today’s accepted symptoms (Oklahoma State University Center for Health Studies is presently studying Morgellons and lists symptoms at: http://healthsciences.okstate.edu/morgellons/ or see the signs and symptoms developed by the Morgellons Research Foundation at http://www.morgellons.org/case.htm), most notably, the historical cases exclude mental manifestations.

Historic Accounts of Morgellons as Presented by Kellett
In 1935 C.E. Kellett, M.D., M.R.C.P. reviewed historic documentation of the Morgellons disease in an article for Annals of Medical History titled “Sir Thomas Browne and the Disease Called Morgellons” (Kellett 1935: 467-479). In addition to Browne’s account of Morgellons in the Languedoc region of France, there are other accounts of these symptoms in the same region over a long span of time and suggesting it was common (see Bassignot 1776, Guillemeau 1609, Montuus 1558, and Pare’ 1564). Other medical documentations include: Faventinus de Victoriis in 1544, Borelli in 1656, Schenckius in 1610 (Germany), Le Clerc in 1715, and, most surprisingly, Crocker’s 1884 account in London.
Crocker’s differs because of its later time period, occurrence in London, and unique symptoms related to “group comedones” (Crocker 1884: 704). Because of the uniqueness of Crocker’s article and, as there are other references of group comedones in the late 1800s and early 1900s (Adamson 1910: 56-57, Anderson 1874: 81, Bulkley 1912: 69, Hartzell 1917: 686-689, Hazen 1922: 152, Jackson 1914: 154- 157, MacKenna 1923: 386-387, Ormsby & Montgomery 1948: 1308-1309, Sutton 1931: 1086, and Sutton & Sutton 1935: 1150-1151), this will be considered separately.

Patterns in Early Documentation of Morgellons
In viewing the early documentations of Morgellons disease some patterns emerge. The patterns are presented under the more general categories of “Symptom related” and “Population related”. While the symptoms give a means to compare to known mercury exposure effects, population information sheds light on the source(s) of probable mercury exposure.
Symptom related-

1) Crawling Sensations-
While none of the early accounts of Morgellons speak specifically of “crawling sensations”, nearly all of the documents suggest that the condition is the result of worms. Descriptions include:
“…throughout the whole body lurk little worms with black heads” (Borelli 1656), “…having the appearance of worms, that are called by the common folk Dracontia” (Faventinus de Victorius 1574), “…bred a certain species of Worms” (Le Clerc 1721), “intercutaneous worm” (Schenckius 1665) and “They never creep entirely out from the pours, but protrude their little heads, which are distinguished as so many black points” (Schenckius 1665).
Ettmuller’s (1682) drawings from microscopic observations certainly give credit to the condition being the result of infestation by parasites, however Le Clerc’s publication “History of Worms” (1715) supports Leuvenhoeck’s later microscopic observations of them being “…Hairs or bundles of Hairs”. The worm or hair debate continues for some time. J. D. Wolf writes in his M. D. thesis that, “With the help of the microscope these cinder-coloured animals may be made out, having two horns, round eyes, a tail which is long, forked, with the extremities, which are bent up, covered with hair. These worms are terrible to look at” (Wolf 1789).
While the specifics of the fibers are still debatable, the common interpretation of them being connected in some fashion to worms suggest that a crawling sensations under the skin is present.
2) Fibers-

Ettmuller (1682) and Wolf (1791) among others would have argued that the follicles were the extended portions of worms jutting out from the skin; many define this symptom as hairs or bristles. Among these descriptions are:
“Hairs on their backs” (Browne 1674),”This disease ariseth from small hairs which are scarce of a pins length, but those thick and strong.” (Pare’ 1678), “Hairs are bred” (Guillemeau 1636) and “hairs or bundles of hairs” (Le Clerc 1721). In some cases the naming of the condition resulted from this symptom “’the hair affection’ (pilaris affectio)” (Montuus 1558) and “…cees…a Provencal term meaning bristles” (Bassignot 1776). To cover both camps on the issue, Schenckius describes them as, “worms or as others would have it hairs” (Schenckius 1665).
Hairs, bristles or fibers appear to be a common symptom of this condition.
3) Neurological Symptoms-
The following descriptions present a severe type of neurological disorder. They include: “…coughs and convulsions” (Browne 1674), “…above mentioned affliction…is a forerunner of epilepsy” (Montuus 1558), “Epylepticall convulsions” (Guillemeau 1635). Other epileptic references include Victoriis (1610) “epilepsy eventually supervenes” (Montuus 1558), and “They toss up and down being not able to take any rest” (Pare’ 1678).
The condition appeared through time to progress into a neurological disorder.
4) Physical locations of Morgellon skin symptoms-
There appears to be some patterns in the location of “hair” coming from Morgellons victims and it may suggest carriage through the nervous system. Locations are described as, “…in the muscles of the arms, legs and back” (Schenckius 1610), “On the back” (Browne 1674), “…on children’s backs and raines” (Guillemeau 1609), “…pricks their back like thorns” (Pare’ 1564), “…relation to the back” (Montuus 1558), “ (settle in) muscular parts of the body…the calves especially” (and) “…sometimes occupy the whole of the back, or failing that at least the interscapular region” (Faventinus de Victorius 1574).
The Morgellons fibers appear to have manifested in the muscular areas of arms and legs but especially occurred on the backs (this distribution pattern differs from the later documentations by Crocker and others).
Population related-
The population effected by this condition is suggested by many of the documentations. The Languedoc region of France was the location of most accounts. Almost universally, this is described as a disease of childhood. There are several documents suggesting women of the population in Languedoc suffered from it (Gillemeau 1609, Bassignot 1776) and one suggesting men did not (Browne 1674). Kellett notes “The great prevalence of the malady upon the extreme poverty of the people at that time” (Kellett 1935: 474). Clues connected to the distribution, prevalence, and possible source of toxicity are found in the various titles used in naming this condition.
1) Common in the Languedoc Region-
This condition was often observed in the Languedoc region of France. There is no doubt that is found regularly through time as Gillemeau (1609) comments, “Women of the countrie of Languedoc, because it is a common disease with them, make no great reckoning of it” and later in his document again presents, “(it is)…verie common in Languedoc”. Over one hundred and fifty years later, Bassignot (1776) makes a similar statement, “(treatment)…done by the women of the district who are so used to recognizing and treating this condition that as a rule they call in neither physician nor surgeon”.
From the middle of the 16th century until the late 18th century, it appears Languedoc was infested with this condition.
2) The Disease is Primarily Documented in Infants and Children-

Nearly all of the historic documents related to Morgellons Disease describe it as an illness of childhood. Bassignot (1776) states the condition, “Attacks nearly all the newly born”. The other documents clearly state the afflicted as, “Children have worms in the back like hairs” (Borelli 1653), “…not in Men but Children” (Browne 1674), “…happens unto children” (Guillemeau 1635), “…exists in little children” (Faventinus de Victorius 1574), “…Children afflicted with this Disease” (Le Clerc 1721), “infantile affliction” (Montuus 1558), “…chiefly troubles children” (Pare’ 1678) and ”(it)…infest infants” (Schenckius 1665).
The aforementioned cases, where women are suggested as having it (Guillemeau 1635, Bassignot 1776) and Browne’s (1674) account clearly stating that men did not have it, are significant. Described as effecting the newborn, infants and children, it may be a condition that formed prenatal.
3) Variety of names listed in Kellett (1935)
As referred to already, several names for this condition relate to the “hair” or “bristle” symptom (Montuus 1558, Bassignot 1776). The number and variety of names presented by the documents in Kellett 1935 suggest the condition had a widespread distribution temporally and geographically. The names mentioned in “Sir Thomas Browne and the Disease Called the Morgellons” (1935) include: Morgellons, dracunculus, dracontia, cridones, crinibus, masquelon, Pilaris affectio, crinons, cee’s, ceddes, comedones (used both in early history and the later historic accounts in London), Les Crinons, Masclous, masquelons, Morbus pilaris, mescoulo, mousclouroun, Soyes (in Haute- Provence), die zehrende Wurm and mitesser (German), die durzemaden. Further insight is found by sorting these names for the Morgellons Disease.
Kellet suggests that the word Morgellons may be an Anglicized version of masquelons which closely resembles Masclous, mescoulo, and mousclouroun. “Mouscouloun itself means the hook which is attached to the end of the spindle” (Kellett 1935: 471) no doubt a term common to weavers and dyers of fabric.
Pilaris affectio (the hair affection) and Morbus pilaris (sickness of the hair) are of Latin origin and reflect on the condition itself. Schenckius (1665) explains the terms used in Germany, “…die zehrende Wurm For the fact that they seize for themselves and consume the food of the infants they infect” and “mitesser” (German); he also documents, “…die durzemaden which is, “Norumbergian for ‘worms that induce wasting’”(Schenckius 1665).
Most interesting of all may be the earliest name documented for this condition—dracontia (Faventinus 1544). In Kellett’s (1935) description of Schenckius’ (1610) volume, Kellett suggest it is related to or confused with an Arabian condition known as Dracunculus. It could be that either or both of these terms directly related to a dye called “dragon’s blood”. As explained, “A great degree of confusion existed for the ancients in regards to the source and identity of dragon’s blood. Dracaena resin, “true” dragon’s blood, and the poisonous mineral cinnabar (mercury sulfide) were often confused by the ancient Romans, as there appears to be a tendency to call all things that are bright red “dragon’s blood”. ("Dragon's Blood." 6-26-2008.http://en.wikipedia.org/wiki/Dragon's_blood (accessed 8-3-2008). Could it be that the “Arabian” name Dracunculus or the later name of dracontia were a natural result of a connection between exposure to “Dragon’s blood” (mercury sulfide) and onset of this condition?



Comedones- late 1800s/early 1900s

The later historic case mentioned by Kellett (1935: 473) of Morgellons Disease is Crocker’s 1884 documentation of comedones in children. A survey of dermatological text from this era resulted in others with mention of comedones and they are included to discuss patterns. The symptoms appear close in description to the earlier accounts. Differences primarily are in the location(s) of skin symptoms and also in population affected.
Symptom Related Patterns
1) Crawling-
These accounts also lack mention of a crawling sensation being among the symptoms. However, several of the texts mention other condition names, which suggest a living creature of worm, grub or other parasite. Burkley (1912: 69) defines, “Comedo- This represent the little black specks upon the face commonly called blackheads, worms, or grubs” and similarly Jackson (1914: 154) lists, “Comedo…mitesser, hautwurmer, grubs, fleshworms”. In several of the texts, claims of comedone occupancy are made. “The so-called ‘bottle bacillus’ a microorganism…is commonly present (and) other micrococci, particularly the staphylococcus aureus and albus, are found in lesions. An animal parasite, the demodex folliculorum is also a frequent inhabitant of the plugs” (Sutton & Sutton 1935: 1151). Jackson is not nearly so specific with, “…many varieties of microorganisms in comedones” (Jackson 1914: 155-156).
Comedones, whether full of life or barren, indeed do appear to have a symptom one could call a crawling sensation.
2) Fibers-
The fibers, hairs, and bristles of Languedoc and other earlier accounts are described as such. The comedones appear to consist of plugs. Jackson (1914: 154) describes these as, “Brown or black topped plug(s)” and “worm-like mass(es) that may be a half-inch or more in length”. Hartzell mentions similar occurrences along with apparent cause, “Occasionally small black dots resembling comedo at a little distance are formed at the mouth of the follicles as a result of a chemical decomposition when mercurial preparations are followed shortly by sulfur, or vice versa”. ( Hartzell 1917: 689). They are also described as, ”…each follicle is plugged with a firm apparently horny plug often having a blackened top” (Adamson 1910: 56).
While the more recent accounts of this skin condition describe a kind of projection from the skin, the common descriptive word among dermatologists was plugs.
3) Physical location of skin symptoms-
Most comedones are described as located on the skin in relation to an irritant such as a hatband or shawl. In Crocker (1884: 704) he describes, “The position in most of the boys corresponded with the part where their caps were in closest contact with the skin; naturally suggesting that they had a causative connection”. Similar hatband and comedone correlations are presented in Adamson (1910: 57), Sutton & Sutton (1935: 1151), Hazen (1922: 152), and Sutton (1931: 1086). Shawl relationships are also considered an irritant accounting for them “…occur(ing) on the cheeks, forehead, and temples of nurslings, and others of tender years.” (Sutton & Sutton 1935: 1150).
Some skin symptoms appear similar to earlier Morgellons Disease accounts. MacKenna (1923: 386) suggests that, “(they)…may occur in groups apart from acne on the back or chest of young children”. Some appear as mixed in location, “…upon the face or upon the chest or back” (Adamson 1910: 56) and others are less well defined as in, “…believed to be due to some form of local infection, the exact nature of which is not determined” (Ormsby & Montgomery 1948: 1309).
Skin symptoms (comedones) are most often located in areas directly associated with hatbands. Some are documented in connection to shawls. Some accounts describe physical locations similar to the earlier Morgellons described primarily in the Languedoc region of France.
Population Related
The majority of those suffering appear to be boys aged, “…between three and twelve years old” (Crocker 1884: 704). The oddest description of those suffering occurs in Jackson (1914: 155) as, “More frequent in chlorotic girls than in coal-heavers”.
The population most referred to in describing those afflicted with comedones is that of boys.


Symptoms/Side Effects of Mercury Exposure, Ingestion, and Absorption
In reviewing numerous documents related to mercury poisoning, related conditions and symptoms appear on a spectrum from less severe symptoms such as drooling (widely documented when mercury was used medicinally see MacKenna 1929: 15-16) to more severe neurological symptoms like the Dansbury Shakes of hatters in Dansbury, Conneticutt (see http://corrosion-doctors.org/Elements-Toxic/Mercury-mad-hatter.htm) to death such as in the Japanese fishing village of Miamata (Allchin, Douglas, “The Poisoning of Miamata” http://www1.umn.edu/ships/ethics/minamata.htm).
The known symptoms of mercury poisoning are extensive and, “…usually misdiagnosed because of the insidious onset, nonspecific signs and symptoms, and lack of knowledge within the medical profession.” Barry M. Diner, MD presents known symptoms, means of exposure and some history of this condition (http://www.emedicine.com/EMERG/topic813.htm accessed August 8, 2008). Neurological symptoms appear in various forms possibly due to type and length of exposure, sensitivity of individual, and amount of mercury.
Side effects were common when mercury was regularly administered for medicinal reasons. A list of possible effects include: “1) Salivation, 2) Nausea, vomiting, diarrhea (which may contain blood) and collapse, 3) Ulcerative stomatitis. Blue lines on gums, 4) Fine tremors of arms, hands, and legs, 5) Nephritis-rarely” (MacKenna 1929:15-16). Medical use of mercury causing skin conditions (eczema mercuriale) was well documented (Anderson 1874: 62, Davis 1913: 102, McKenna 1923:273, Stelwagon 1914: 283, Strickler 1927: 207, Walker 1911: 71,) and other symptoms were documented as well (Mapother 1899: 108-112, Ohmann- Dumesnil 1908: 236-237, Ormsby 1934: 186, Tobias 1956: 470, and Wiener 1947: 267).

Connecting Symptoms and Patterns to Mercury
One pattern of interest that was not yet mentioned was the description by many of the observers that this illness was new. In 1558, Montuus states that the condition was “…A new affliction to infants”. Pare’ in 1564 confirms this to be true in the Languedoc area as it was, “…not known to the ancient physicians”. Somewhat later in Germany Schenckius (1610) writes it was, “…unknown to old authorities”. According to Kellett (1935) in the 1880s of London it is, “…described once more as a new condition”. Could the newness of this condition correlate with widespread access to a source of mercury exposure?
Beginning in Languedoc, the documented time period of approximately 1550 until the late 1700s correlates well with the Languedoc textile industry—especially “…the production of silk weavings and draperies” (Rafael Hyacinthe, Archivist, Archives departementales de I’Herault, Montpellier 2008: personal communication).
A likely means of mercury exposure would have been cinnabar in use as a textile dye. Cinnabar is “a bright red mineral consisting of mercuric sulphide” (http://www.askoxford.com/concise_oed/cinnabar?view=uk).
“Rossetti in the Plictho of 1548 refers to at least two recipes using cinnabar (mercuric sulphide) or vermillion” (John Edmonds, Dye Expert and Author, 2008: personal communication). The early names of Dracunculus (Schenckius 1610) and dracontia (Faventinus 1554) as they relate to “dragons blood” (cinnabar form) may be significant.
The populations of Languedoc most affected were the infants of the economically poor. The lack of men having this condition is likely a reflection on sexual division of labor. Mercury from exposure to cinnabar when dyeing could have been absorbed by a woman’s body and carried to her womb and a developing fetus. In the documentation of Minamata, “Mercury would concentrate in a developing fetus, leading to congenital cases, even where the mother showed no signs of the poisoning” (Allchin, Douglas. "The Poisoning of Minamata"http://www1.umn.edu/ships/ethics/minamata.htm. accessed August 3, 2008). The FDA recently released the statement, “Dental amalgams contain mercury which may have neurotoxic effects on the nervous systems of developing children and fetuses” (http://www.fda.gov/cdrh/consumer/amalgams.html). Fitting the general patterns of Languedoc, the EPA states, “Methylmercury is particularly damaging to developing embryos, which are five to ten times more sensitive than adults” (http://www.usgs.gov/themes/factsheet/146-00/). The later case in Germany (Schenckius 1610) may document the spread, use, and effect of cinnabar in dyeing.
Mercury poisoning has neurological effects as shown in the Miamata “Dancing Cat” syndrome (Allchin, Douglas. "The Poisoning of Minamata"http://www1.umn.edu/ships/ethics/minamata.htm. (accessed August 3, 2008), “Dansbury Shakes”( http://corrosion-doctors.org/Elements-Toxic/Mercury-mad-hatter.htm#Danbury_Shakes), and indigenous children of Northern Quebec (McKeown- Eyssen et. al. 1983: 470-479) as well as numerous effects documented when mercury was used medicinally. Recorded side effects of mercury may be viewed from its use as a medicinal in the 1800s and early 1900s. Of these, the most widely documented effects include; gastrointestinal and neurological consequences, skin eruptions, halitosis, dental deterioration, and excessive drooling (MacKenna, Robert M. 1929: 15-16, Davis 1913: 102, Stelwagon 1914: 283, MacKenna Robert W. 1923: 273, Strickler 1927: 207, Walker 1911: 71, Evans 1912: 251). The epilepsy like symptoms, skin eruptions in the form of hairs or bristles, the placement of hairs, and the reference of “worms” may be neurological in nature and not parasitic.
Sequeira (1911: 275) defends his use of medicinal mercury, “The drug is well borne by even the youngest of infant…(resulting in the)… presence of snuffles (which) sometimes prevents the child sucking (and he suggests they be fed by spoon)”. Similar effects are described in some of the earliest accounts of Morgellons. Bassignot describes the babies’ dilemma well as the, “Complete inability to suck, the tongue being unable to fold on itself and grasp the nipple” (Bassignot 1776). An even earlier account states that the babies “…neither sleep nor take their milk” (Borelli 1656). Again, this may be indicative of a neurological disorder.
The hairs and fibers may be the same symptom later documented as “plugs” of the comedones (see photo in Sutton & Sutton 1935: 1151). If they are the same physiological symptom, could they represent the body’s attempt to remove toxins?
The comedones of the late 1800s and early 1900s are primarily documented as forming in areas directly touching a hatband (however, see photo in MacKenna 1923: 387). Hats of this time period contained mercury and it could be passed onto the wearer. The connection to shawls may also relate to use of a mercury containing dye. The population of boys from three to twelve being the primary carriers of such conditions may relate to a higher concentration of mercury in smaller hats (as observed during the hat making demonstration at Musee du Chapeau in Chassel-Sur-Leon, France, contents in the felt would become more concentrated as the original felt is shaped and shrunk).

Morgellons in Today’s World
While it is uncertain how many are suffering from the Morgellons symptoms, presently close to 13,000 families are registered with Morgellons.org. I had the condition myself (see Keleher, Joseph W.. "Hell and Back Again” Explore 17. 4 (2008), members.cox.net/llyee2/NCS_article_by_joe.pdf . (accessed August 12, 2008).), and followed the protocol designed by Dr. Omar Amin. The “bug” crawling sensations and other symptoms ended some time ago (although I get a slight electrical current-like sensation across the base of my feet on occasion). I will continue detoxifying for some time.
Dr. Amin’s studies suggest this condition (appropriately named Neurocutaneous Syndrome) is due to certain dental adhesives (see Amin, Dr. Omar. "Neurocutaneous Syndrome (NCS)”members.cox.net/llyee/ncs_diagnosis.htm. (accessed August 12, 2008)), but this would not account for the historic documentations.
Given the historically documented patterns discussed and the possibility of a mercury connection, further studies are needed. The symptoms described are similar to present day Morgellon’s symptoms and future research may determine whether the historically documented is the same as todays.
Currently, there are several funded research organizations studying Morgellons Disease. These included The Morgellons Research Foundation, Oklahoma State University- CHS Center for the Investigation of Morgellons Disease, and The Kaiser Permanente’s Northern California Division of Research. Let’s hope they can find a cure.







Sources:

Adamson,H. G.. Skin Afflictions in Childhood. London: Henry Frowde- Oxford University Press and Hodder & Stroughton- Warwick Square, E.C., 1910.

Allchin, Douglas. "The Poisoning of Minamata"http://www1.umn.edu/ships/ethics/minamata.htm. (accessed August 3, 2008).

Amin, Dr. Omar. "Neurocutaneous Syndrome (NCS)”members.cox.net/llyee/ncs_diagnosis.htm. (accessed August 12, 2008).

Anderson,M. A Practical Treatise Upon Eczema. London: J & A Churchill, 1874.

http://www.askoxford.com/concise_oed/cinnabar?view=uk

Bassignot,M.. Hist. et. Mem. Soc. de Med.. pp.173-176, 1779.

Borelli,P.. Hist. et obs. cent. prima. Castris, Colomerius. p. 88, 1653.

Browne,Sir Thomas. The Works of Sir Thomas Browne. Geoffrey Keynes. London: Faber & Gwyer, 1931.

Bulkley,Duncan. Diseases of the Skin. Paul B. Hoeber, 1912.

Crocker, H. Radcliffe. "Comedones in Children." The Lancet, April 19, 1884, 704.

Davis,Haldin. Skin Diseases in General Practice. London: Oxford University Press and Hodder & Stoughton, Warwick Square, E.C., 1913.

DeVita-Raeburn, Elizabeth. ""The Morgellons Mystery"Psychology Today (MAR/APR 2007), 1-2, http://psychologytoday.com/articles/pto-20070227-000003.xml. (accessed August 4, 2008).

Diner, Barry M.. "Emedicine- Toxicity, Mercuryhttp://www.emedicine.com/EMERG/topic813.htm. (accessed August 8, 2008).

"Dragon's Blood." 6-26-2008.http://en.wikipedia.org/wiki/Dragon's_blood (accessed 8-3-2008).

Edmonds, John, Dye Expert and Author, 2008: personal communication.

Etmuller,Acta eruditorum. Lipsiae, Grossius. p. 316, 1682.

Evans,Willmott. The Diseases of the Skin. London: University of London Press, 1912.

http://www.fda.gov/cdrh/consumer/amalgams.html

"The following case definition has been developed by the Medical Advisory Board of the Morgellons Research Foundation." http://www.morgellons.org/case.htm (accessed 4-21-2008).

Fox,Tilbury, M.D.. Skin Diseases: Their Description, Pathology, Diagnosis, and Treatment. London: Robert Hardwicke, 192, Picadilly, 1864.

Hartzell,Milton B.. Diseases of the Skin: Their Pathology and Treatment. Philadelphia & London: J. B. Lippincott Company, 1917.

Hazen,Henry H.. Diseases of the Skin. London: Henry Kimpton, 1922.

Hyacinthe, Rafael, Archivist, Archives departementales de I’Herault, 2008: personal communication.

Evans,Willmott. The Diseases of the Skin. London: University of London Press, 1912.

Faventinus de Voctorius,Leonellus. Practica medicinalis et tractatus de aegritudinibus infantium cum Appedix ad eundem per Georgium Kufnerum Jouniorem. Lugdun. apud Vencentium: p. 81, cap. XII, 1574.

Guillemeau,J.. The Nursing of Children. London: Anne Griffin, p. 116, 1635.

Jackson,George Thomas. The Ready Reference Hand-Book of Diseases of the Skin. London: Henry Kimpton, 1914.

Keleher, Joseph W.. "Hell and Back Again” Explore 17. 4 (2008), members.cox.net/llyee2/NCS_article_by_joe.pdf . (accessed August 12, 2008).

Kellett, C.E.. "Sir Thomas Browne and the Disease Called The Morgellons." Annals of Medical History, n.s., VII 1935, 467-479.

Le Clerc,D.. A Natural and Medical History of Worms. London: Wilcox, p. 280, 1721.

MacKenna,Robert M.. Aids to Dermatology and Venereal Disease. London: Bailliere, Tindall & Cox, 1929.

MacKenna,Robert M.. Diseases of the Skin; A Manual for Students and Practitioners. London: Bailliere, Tindall & Cox, 1923.

Mapother,E. D.. Papers on Dermatology and Allied Subjects. London: Bale, Sons & Danielsson, Limited, Oxford House, 1899.

Mckeown-Eyssen, Gail E. John Ruedy & Alan Neims. "Methyl Mercury Exposure in Northern Quebec: II Neurologic Findings in Children." American Journal of Epidermiology 118, no. 4 (1983): 470-479.

Morgellons Research Foundation at http://www.morgellons.org/case.htm (accessed Aug. 8, 2008).

Montuus,H.. de infantum febribus, etc.. Lugduni, tornaesius & Gazius, p. 13, 1558.

Ohmann-Dumesnil,A. H.. Diseases of the Skin. St. Louis: C.V. Mosby Medical Book & Publishing Company, 1908.

Ormsby,Oliver S.. A Practical Treatise on Diseases of the Skin for the Use of Students and Practitioners. Philadelphia: Lea & Febiger, 1934.

Ormsby,Oliver S. & Hamilton Montgomery. Diseases of the Skin. London: Henry Kimpton, 1948.

"OSU Center for Health Sciences/ Morgellons Disease." 2007.http://www.healthsciences.okstate.edu/morgellons/ (accessed Aug. 3, 2008).

Pare,Ambroise. The Works of That Famous Chirurgeon, Ambroise Parey. T. N. Johnson. London: Clarke, p. 215, 1678.

Sequeira,James H.. Diseases of the Skin. London: J & A Churchill, 1911.

Schenckius,J.. Obs. med. rar. Francfort. Beyer, p.703, 1665.

Stelwagon,Henry W.. Treatise on Diseases of the Skin for the Use of Advanced Students and Practitioners. Philadelphia and London: W. B. Saunders Company, 1914.

Sutton,Richard L. & Richard L. Sutton, jr. Diseases of the Skin. London: Henry Kimpton, 1935.

A Study of Chronic Mercurialism in the Hatter's Fur-Cutting Industry. Washington, D.C.: Public Health Bulletin #234, U.S. Gov't Printing Office, 1937.

Strickler,Albert. Textbook on Diseases of the Skin and Syphilis. Philadelphia: F. A. Davis Company, 1927.

Sutton,Richard L.. Diseases of the Skin. The C. V. Mosby Company, 1931.

Tobias,Norman. Essentials of Dermatology. Philadelphia, London, & Montreal: J. B. Lippincott Company, 1956.

Walker,Norman. An Introduction to Dermatology. Edinburgh & London: William Green & Sons, 1911.

Wiener,Kurt. Skin Manifestations of Internal Disorders. London: Henry Kimpton, 1947.

Wolf,J. G.. Dessertatio inauguralis medica de comedonibus. Lipsiae, Klaubarthia, 1789.