Some peace while putting the pieces together

I am creating this at the new coffee shop in town. The owner and I just talked about a concept we're calling a "bright ripple". The bright ripple starts with one, builds to two, and keeps growing. It's positive action growing exponentially until it creates a tsunami of bright beauty and chases off the dark. Everyone get your boards and surf the ripple!

Saturday, June 11, 2011

Comparing Tribes: HIV/AIDS and Morgellons Part 2

Before getting started on a short comparison between the HIV/Aids and Morgellons Tribes, I wanted to update on my own health. While I am less than perfect (symptoms seem more invasive at night), I’ll have a good day or two and then begin to feel the symptoms of whatever I’m carrying again. I have an appointment lined up with a tropical disease specialist in Rochester in 10 days; I am hopeful he will have answers and point me in the direction of complete health.

My comparison of the Tribes comes from thoughts of having HIV (though as I said last time I tested negative). I learned from my Morgellons’s experience to make use of the internet as a tool. Assuming I would find out I had HIV, I began asking medical professionals for direction. I also took the time to look into online support from other sufferers. Of course, I also looked for possible cures.

While there are many “Tribes” of disease sufferers found online, I find Morgellons and HIV/Aids similar in the generally accepted diagnosis of “incurable”. I know for Morgellons this is not true (see my own story “Hell and Back Again” as well as a growing number of other stories) and there is a recent case of a German man who was HIV positive for 16 year and, after a bone marrow transplant and chemotherapy, is now HIV free. Miracles do happen!

One of the surprises I found among the HIV/Aids Tribe is a prevalent approach to live life fully. They have get-togethers, dances, cruises, and even marriages. My heart goes out to these individuals in the face of such a condition. They are a good example to all of us.

The only organized Morgellons event I know of is the now annual Scientific/Medical Conference on Morgellons Disease taking place in a church conference center in Austin, Texas (it is something, but strikes me as a little sad). I know there are some support groups out there. And, of course, there are online support groups (my opinion…some good, some bad). Yes, we need more discussion among the medical community, but we also need some positive means of connecting as individuals for fun!

One other comparison to be made is the medical worlds view towards these separate camps. It is disturbing there are still peer reviewed and accepted articles related to Morgellons being delusional. When will the tides turn? Of course, this one piece the HIV/Aids Tribe has as an advantage; the medical world knows what they have is real and they have the means to diagnose it. In comparing numbers of medical research found on, the current number of pieces dedicated to Morgellons is 30 (many of the delusional camp)and HIV/Aids is 97,891.

What can we, The Morgellons Tribe, take from considering the HIV/Aids Tribe? Let me share my opinion.

- Open to faith, let go of fear (though I feel both tribes are doing this exceptionally well)
- Live life as fully as possible (however, I do not recommend a trip to Africa)
- Organize, support, and assist each other- A Morgellons’s Cruise? Why not!
- Let go of anger, open up to hope
- Build knowledge of medical condition
- Share what you learn along the (document your own story)

We have much to learn from one another. Certainly, sharing within our own Tribe helps. I hope we can expand our thoughts and prayers to others who also suffer beyond the Morgellons community. Peace to you with HIV/Aids.

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