Reclaiming Your Internal Environment- Part 1

As I sit and think about the steps one could take in reclaiming their internal environment, many avenues come to mind. I suspect some ways are better than others depending on our individuality and specific toxicity issues. Baseline testing through various companies could be an effective way of measuring progress, though I know financing such a venture may be less than ideal for those on a tight budget.Keeping blanket goals for anyone seeking a cleaner internal environment, budgetary concerns and approaches I found to have "the most bang for the money", I will present six parts on the reclaiming process. My suggestions are by no means all inclusive and are certainly open to improvements; still here's the break down in topics for my sharing.

Part 1- Introduction
Part 2- Opening Detox Channels
Part 3- Your Home
Part 4- Specifics Related to Dental Toxicity
Part 5- New Habits to Build into Healthier Living
Part 6- The Progress, Challenges and Stumbles

As always, I suggest those suffering from toxicity (and let's face it...who isn't)bring a medical professional into the picture to share before implementing any health related plans. Your suggestions are very welcome at any point along the way. Let's hope for happy trails, Joe

Treatment of Morgellons Sufferers

I have been writing an essay on the treatment of Morgellons sufferers. It has not been an easy subject to approach. In an article titled "Delusional Infestation", Freudenmann and Lepping give step by step suggestions for handling those dealing with these symptoms (found at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2772366/?tool=pubmed ). It is easy to get angry at their suggestions and judgmental wording...instead I hope to design a better approach. One piece I am suggesting is a questionnaire. I put it below for review and suggestions. I want it to be a means for positive progress (both for the patient and the medical professional). Thanks for any input! Joe

Morgellons Suggested Questionnaire
Name _______________________ Date ______________
List all symptoms experienced (expand on back if necessary)- ________________________________________________________________________________________________________________________________________________________________________________________________________________________
When did symptoms begin? ___________________________________________
What time of day and what setting do symptoms regularly occur? ________________________________________________________________________________________________________________________________________________
Describe progression of symptoms. ________________________________________________________________________________________________________________________________________________________________________________________________________________________
Location of crawling sensations include: ________________________________________________________________________________________________________________________________________________
What are patterns related to crawling sensations? Do they always start in one location? Are they worse in certain areas? Do they seem to spread across certain areas? Please describe: ________________________________________________________________________________________________________________________________________________________________________________________________________________________
Please describe life history of health. Note any times you have been in the emergency room and any diagnoses. Give approximate age, date or distance into past (ex. 3 years ago, etc.). ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________
Locate any skin lesions on body (chart on drawing)







Give any more information you feel needs documentation. ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________
THANK YOU FOR CONTRIBUTING TO THE UNDERSTANDING OF MORGELLONS

Wilson's Syndrome

I had planned on beginning a series titled "Reclaiming Your Internal Environment". but have something else to share first. I have figured out what I have been suffering from for 5 months. The symptoms fit and the self testing justifies the diagnosis, I have a condition called Wilson's Syndrome and it relates to the thyroid.

My symptoms were extensive but primarily include: exhaustion, racing heart, spaciness (brain fog), loss of memory, lack of concentration, tingling in limbs, and an overall feeling of just not being well. There are other symptoms but those are the major. Several days ago, an internet search brought up thyroid problems as a possible cause. I search through some medical books at my mother's place and look up hypothyroidism. At the end of the entry all my symptoms were listed...along with a self-test. The test is simple. You take your temperature three times each day (for women do not test near your period...it effects results) for several days (3 to 5). Average each day and then average your overall temperature. If your body temp averages below F 97.8, you have Wilson's Syndrome.

I mentioned this to Trisha Springstead, RN and Morgellons hero (she has helped a ton of people), she said she thought the overall condition related to the endocrine system. I think she is right.

I highly recommend doing a self test for this Syndrome. I suspect it somehow relates to Morgellons. It is not a condition you want to have for an extended period undiagnosed. You can also find much information at:http://www.wilsonssyndrome.com/ .

I am very happy to have figured this out. I have been to a total of four doctors here in the US...none of them even mentioned the possibility of my suffering connecting to the thyroid. It amazes me what we have to figure out for ourselves. Morgies, please let me know if you find Wilson's Syndrome is part of your health issues...the more we figure out the patterns, the more we help our tribe.

Diet and Methylation Speculation

It has now been four months since my return from Africa. I still am not feeling 100% well (although okay at times). I've met with four separate doctors. I've been tested for liver problems, kidney problems, adrenal problems, HIV ...and wait for results of parasite testing and other. I am sick and tried of being sick and tired, as the saying goes.

While I don't like to think about it, I have a family history of cancer. I now wonder if it is what really needs to be considered. My immune system was taxed greatly while overseas and it might have put me out of balance. So, in considering cancer, I looked at ways to beat cancer without chemotherapy. One way is diet; changing our internal environment from acidic to alkaline.

I wondered about the possible relationship between diet and Morgellons symptoms. If the Barrier Theory is correct, could an acidic environment add to mercury changing from inorganic to organic species? It ends up it could. There is a process in acidic bodies of water called methylation. I'm speculating methylation would alter inorganic mercury to methylmercury. Of course I'm not entirely certain of how all of methylation occurs or the byproducts, but it is worth considering.

There are a ton of books and online resources related to PH balanced diets. I know I need to be better at getting my internal environment less acidic. I think for those of us fighting off toxins, parasites, and other imbalances, alkaline promotion makes sense.

Detox Setting- The Home

Last year I spent almost 4 months removing toxins and making my home a comfortable place to live in. My plan had been to find work teaching and continue on my detoxification. Things never go exactly as you plan. Not finding true work, I went to Africa to teach and got very sick. I feel like I've taken some steps back in getting my health in order.

I do believe a key factor in regaining health is to eliminate as many toxins from your life as possible. I did do as much as I could with the prompting of Natural Home Magazine. They wrote an article on the initial assessment of my structure and then also did a follow-up article. I've provided the links below, but will add NH has excellent related articles on good cleaning materials and keeping your home healthy. They're a great magazine!


http://www.naturalhomeandgarden.com/Green-Remodeling/Pennsylvania-Pick-Me-Up.aspx




http://www.naturalhomeandgarden.com/whole-house-remodeling/can-this-home-be-greened-pennsylvania-pick-me-up-completed.aspx

Dave Wilcox- Show the Way

I hope this link works. I sometimes get fuzzy brained when trying to do cyber- activities. Anyhow, the lyrics say it all.


http://youtu.be/cy0LBGTYyfg

Comparing Tribes: HIV/AIDS and Morgellons Part 2

Before getting started on a short comparison between the HIV/Aids and Morgellons Tribes, I wanted to update on my own health. While I am less than perfect (symptoms seem more invasive at night), I’ll have a good day or two and then begin to feel the symptoms of whatever I’m carrying again. I have an appointment lined up with a tropical disease specialist in Rochester in 10 days; I am hopeful he will have answers and point me in the direction of complete health.

My comparison of the Tribes comes from thoughts of having HIV (though as I said last time I tested negative). I learned from my Morgellons’s experience to make use of the internet as a tool. Assuming I would find out I had HIV, I began asking medical professionals for direction. I also took the time to look into online support from other sufferers. Of course, I also looked for possible cures.

While there are many “Tribes” of disease sufferers found online, I find Morgellons and HIV/Aids similar in the generally accepted diagnosis of “incurable”. I know for Morgellons this is not true (see my own story “Hell and Back Again” as well as a growing number of other stories) and there is a recent case of a German man who was HIV positive for 16 year and, after a bone marrow transplant and chemotherapy, is now HIV free. Miracles do happen!

One of the surprises I found among the HIV/Aids Tribe is a prevalent approach to live life fully. They have get-togethers, dances, cruises, and even marriages. My heart goes out to these individuals in the face of such a condition. They are a good example to all of us.

The only organized Morgellons event I know of is the now annual Scientific/Medical Conference on Morgellons Disease taking place in a church conference center in Austin, Texas (it is something, but strikes me as a little sad). I know there are some support groups out there. And, of course, there are online support groups (my opinion…some good, some bad). Yes, we need more discussion among the medical community, but we also need some positive means of connecting as individuals for fun!

One other comparison to be made is the medical worlds view towards these separate camps. It is disturbing there are still peer reviewed and accepted articles related to Morgellons being delusional. When will the tides turn? Of course, this one piece the HIV/Aids Tribe has as an advantage; the medical world knows what they have is real and they have the means to diagnose it. In comparing numbers of medical research found on pubmed.gov, the current number of pieces dedicated to Morgellons is 30 (many of the delusional camp)and HIV/Aids is 97,891.

What can we, The Morgellons Tribe, take from considering the HIV/Aids Tribe? Let me share my opinion.

- Open to faith, let go of fear (though I feel both tribes are doing this exceptionally well)
- Live life as fully as possible (however, I do not recommend a trip to Africa)
- Organize, support, and assist each other- A Morgellons’s Cruise? Why not!
- Let go of anger, open up to hope
- Build knowledge of medical condition
- Share what you learn along the (document your own story)

We have much to learn from one another. Certainly, sharing within our own Tribe helps. I hope we can expand our thoughts and prayers to others who also suffer beyond the Morgellons community. Peace to you with HIV/Aids.